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Substance use is often hidden – people suffer from stigma in silence Substance use is often hidden – people suffer from stigma in silence

Substance use is often hidden – people suffer from stigma in silence

In this heart-wrenching talk, Petra shares Danny’s story and the idea that people who use drugs are just like everyone else: people who deserve a chance to be safe and healthy, and to live without judgment or shame.

Substance use is often hidden – people suffer from stigma in silence

In this heart-wrenching talk, Petra shares Danny’s story and the idea that people who use drugs are just like everyone else: people who deserve a chance to be safe and healthy, and to live without judgment or shame.

Produced by TEDx Talk. More info at MomsStopTheHarm
Petra Schulz: The call that changed our life forever came in January, 2011 from our youngest son, Danny. He was living in Vancouver at the time where he attended culinary school. And without much of a lead-up, he told me that he was using drugs, had been for some time and that he was in trouble. It must’ve been hard for him to come forward and be truthful about his struggles, but the fact that his boyfriend had left him meant he had no home. And since he had spent his student loan, he didn’t have money. When he arrived back in Edmonton, Danny started the cycle of detox and relapse. Every time the drugs were out of his system, we thought we could get the old Danny back. The child we knew. The one who made us laugh, who preferred a typewriter over a computer and loved vintage cars. We learned the hard way that this is not the way substance use disorder works. It was painful and terrifying to watch the withdrawal symptoms. Being dope sick is worse than the worst flu. And I thought he would do anything to avoid that, but the cravings remain long after the drug is cleared out of the system and his underlying problems had not gone away. In retrospect, I understood that he was dealing with multiple risk factors. He struggled with social anxiety, as a gay teen he had faced bullying in high school, and his learning disability meant he had difficulty with impulse control. Danny had been self-medicating, starting with prescription opioids he easily obtained illicitly. When those were not available anymore, he moved on to more dangerous street drugs. I once asked him, I said, “Danny, why do you use?” And his reply was eye-opening. Danny said, “When I take one of these rooms, one of these pills, when I take one of these pills, I can walk into any room and just be who I am.” And I thought, “Wow, that should not have been too much to ask. There should have been a way for him to do that without having to use drugs.” Most of us don’t use substances problematically, but people like Danny who do usually do because of underlying pain, physical or emotional, as well as trauma. In a conversation about Danny, my husband, Rick, said to me, “We could lose him to that. He could die.” I said, “No way. No, no way. We got this. He will be okay.” In our family, I’m the one who jumps into overdrive if something goes wrong. And I thought this too could be overcome. The information the health system gave us was not helpful. Nobody explained how treatment opioid dependence, how treatment should look like, no less harm reduction about keeping people as safe and as healthy as possible without judgment and without shame. There was so much we did not know. I learned about Naloxone, the antidote that can reverse an overdose only after Danny died. For Danny, things got worse before they got better. Danny moved back to Vancouver. He continued his drug use. A person who uses opioids over a longer period of time develops tolerance. And feeling good and positive, the ability to walk into any room is replaced by just avoiding the withdrawal symptoms. Danny needed higher doses and started to inject. During this time, we had very little contact with him and there were many sleepless nights. But finally, in 2012, Danny was ready to seek treatment with methadone while he was still living on the coast. And later that year, he came back home to Edmonton to put his life back together. We had the joy of experiencing our youngest almost how we knew him. He found a job in one of Edmonton’s best restaurants and he had an apartment really close to work. On Sundays, he came home for dinner, and one of my favourite images is Danny sitting at our kitchen table sharpening my knives. A good chef always keeps his knives sharp, and Danny kept his and mine that way. Sadly, he did not give his treatment enough time. He quit the psychologist because it interfered with work hours and he did not stay on methadone long enough to be stable. We had falsely assumed that methadone is just another drug and we had encouraged him to taper probably too soon. For a person in opioid substitution treatment, for that to be effective, they have to be stable before they can taper. We don’t expect people with other health conditions to live without their meds, but we do so in substance use when we may clean the gold standard against medical advice and with often devastating consequences. In the end, Rick’s fearful prediction came true. Danny relapsed. He bought one more pill, which he thought was a fake Oxycontin, but in fact was fentanyl. On April 30th, 2014, Danny died alone in the apartment that he had so carefully furnished only a few months before. As a family, we had many difficult decisions to make, decisions that we were not prepared for. The most difficult one, what do we say about the cause of death? Do we tell the truth? How do we find those words? When we prepared for the funeral, we learned that giving a eulogy means to speak well of someone. And it was clear to us that if you speak well of someone, you don’t tell lies. How Danny lived and how he died was part of him. And we told the full story. After the funeral, our friends, his workplace, everyone was surprised. Substance use is often hidden and Danny was a master at disguise. We were also amazed at the number of people in our circle of friends who came forward and they had a loved one facing the same or similar challenges or they themselves were. And I thought, “Where had these people been. I never knew about this.” But then I understood they had been where we were. They have had suffered from stigma in silence. Overdose does not discriminate. It can happen to anyone in any family. When the numbers continued to climb and there was no action from governments, I reached out to health officials and to the media. I met like-minded women who shared my pain, but also shared my desire for change. Together we formed the group, Moms Stop the Harm. These are some of the loved ones members of our group mourn. They are people from all walks of life, all genders. Most are young men between 25 and 40. Most struggled with mental health or trauma. Most died somewhere alone. By the end of this day when we all go home, in Canada, in this country, 11 people, 11 people will have died from an overdose. Imagine if your child was poisoned from the water supply and more and more people were dying from drinking that same water. Would we allow for this to happen? Would we stand by and watch or would we take action? Would we go about and fix this problem? It will take a profound change to address this crisis. The people most affected and experts in drug policy call for action in five key domains. Number one, we need a safe, regulated supply of substances on prescription for people who need them so nobody has to turn to toxic street drugs. Number two, we need to decriminalize the personal possession of substances so we can help people instead of locking them up. Number three, we need harm reduction services for everybody everywhere so we can keep people as safe and as healthy as possible. Number four, we need ready access to evidence-based treatment so nobody dies waiting. And number five, we need upstream prevention by addressing the underlying conditions such as mental health and trauma. We must end stigma, shame and blame for so-called bad individual choices. In doing so, we will allow people to come forward and seek the help they need. The truth is people who use drugs, people like our son, Danny, are like you and me. They deserve a future and they deserve a chance. Danny did not have that chance. He’s on our mind every day and we miss him terribly. With him, laughter has left our family and my knives are often dull. I often wonder how different the outcome could have been for Danny and for us, for our family. And it is our collective responsibility to ensure that the outcome is different for you and for your children. And I sincerely hope that telling Danny’s story will help make that happen. Thank you so much.
Your empathy and compassion can help save a life Your empathy and compassion can help save a life

Your empathy and compassion can help save a life

What if shame and stigma could be eliminated? What if you could replace them with empathy and compassion? How many lives could you save? Sarah Keast, a widow, writer and activist explores these questions as she shares her powerful story of love and loss.

Your empathy and compassion can help save a life

What if shame and stigma could be eliminated? What if you could replace them with empathy and compassion? How many lives could you save? Sarah Keast, a widow, writer and activist explores these questions as she shares her powerful story of love and loss.

Produced by TEDx Talks
Sarah Keast: This is one of my favourite photos but in full disclosure those are my kids so clearly there’s a bit of mom bias going on here. And as a fashion girl by profession I just love our outfits. I love how the patterns are mixing. I love how we’re coordinating but so subtly. I love the little shoes. But what our outfits don’t tell you is how we were feeling that day. I remember the anxiety that was tearing my insides apart. I remember my hands were shaking like a leaf. I remember the extra coat of waterproof mascara I layered on that morning. But most of all, what I remember is what my brain was screaming at me. It was deafening and it was unrelenting. It kept screaming at me, “I can’t believe we are about to go to his funeral. I can’t believe I’m about to bury my husband. I can’t believe he’s dead.” In August, 2016, a week before this photo was taken, my husband died unexpectedly and I was about to get in a car with those two little girls, age two and five, and we were about to go to his funeral. It’s a beautiful family photo but it breaks my heart because it’s incomplete. Let me introduce you, this is my husband. This is Kevin. He was one of a kind. Kevin had his master’s in social work and he had spent almost a decade working in long-term care with senior citizens and he’d spent a shorter stint working in palliative care in a hospital. And Kevin always said that the best part of his job was that he got to talk to old people all day long. He said he just loved hearing the stories they had to share. Kevin was an amazing father. I remember when our oldest daughter was four she was invited to a Halloween themed birthday party and all the kids were encouraged to wear their costumes and the grownups were too, but of course none of us did except for Kevin. And the best part is, the party was in a public park. So there was a bunch of people in the park that didn’t know Kevin was wearing a costume and he was dressed as a heavy metal rocker at that with the zebra print leggings, his mullet wig. It was a true testament to the love of his children because Kevin actually hated Halloween and he hated dressing up. Kevin had a love of all things political and I still can’t believe that in the last two years he’s missed so much in politics in Canada and the U.S. Kevin loved tattoos and he was covered in them. He loved the art form so much. He had one on his leg that was simply the letters W D T S F . And he would grin like a Cheshire cat when someone would say, “Kevin, what does that stand for?” And he wouldn’t answer, he’d just laugh and smirk. And they’d say again, “Kevin, what does that stand for?” And he still wouldn’t answer and he’d laugh. And then they’d ask again, “What does that stand for?” And then it would dawn on them. “Oh, W D T S F”. Kevin, his silliness and humour are what got me through many a day. He was my best friend and he was one of the best things that ever happened to me. A week before that family photo was taken my family was ripped apart unexpectedly. Those little girls, they are now fatherless. I had 16 years with the love of my life. But I’m now facing 40 plus years without him. But what I haven’t shared is how Kevin died and the truth is my husband was a heroin addict. For seven of our 16 years together he shot up heroin alone in our basement and he died of an accidental overdose at home. To the outside world we were this beautiful family, a young couple, university educated, in love with two beautiful young daughters. But on the inside, we were a family ripped apart by mental health and substance use disorder suffocated by shame and stigma. We led a double life for seven years. Now, I want to ask you a question. When I told you that Kevin died of a heroin overdose what was the flickering thought that may have passed through your mind? My stomach tightens every time I say it. I say it bravely, I say it confidently, but my insides turn over and I actively work to control the red flush of shame that is desperate to overtake my face when I tell the world my husband was addicted to heroin. Because in the unspoken hierarchy of death, overdose it’s pretty well at the bottom. I will tell you at a party I am a huge buzzkill. Someone will find out that my husband has passed away and they’ll say very kindly, very sympathetically, “Oh, I’m so sorry for your loss. How did he die?” And then I’ll look at them and I’ll say, “He died of a heroin overdose.” That pretty much shuts the conversation down right there as a look of horror passes over their face. That though of judgment that may have flickered through your mind, that’s what I want to battle. That feeling of shame that I feel when I tell the world my husband died of a heroin overdose that’s what I want to eliminate. Because it’s the same shame that is suffocating those who are struggling today with substance use disorder. That shame keeps their suffering in silence. It keeps it in the shadows and prevents them from reaching out for help. I know because Kevin and I lived it. In 2004, Kevin was diagnosed with generalized anxiety disorder and the stigma that surrounded his mental health disorder it most certainly silenced him. He shared his struggles with very few people but he wanted to feel better. He wanted to feel different. He wanted to feel something. He wanted to feel normal. His mental health disorder was most certainly a driving factor in his substance use but never in a million years was heroin something I expected him to try. Heroin is for junkies on the street, not people like us. But how naive I was. I found out about his heroin use almost a decade ago. He overdosed at home and I found him. He was unconscious. He was barely breathing. He was blue in the face. He was nearly dead. I called 911 and the paramedics revived him. But that traumatic night, that changed both of us for the rest of our lives. Kevin fought tooth and nail for the next seven years to resist the power that heroin had over him and he struggled. He struggled with stints in inpatient rehab, outpatient rehab. He lived in a sober living facility and eventually living back with me. And eventually his Narcotics Anonymous meetings and his recovery work it started to stick and he got a year in recovery and then he got two years and then he relapsed. And then he got another year in recovery and then he relapsed again. Over and over and over again the cycle repeated itself. I remember after one relapse we were sitting in our family room at home, Kevin’s head in my lap and he was sobbing. He sobbed, “I hate this. I don’t want this. I don’t want to do this to you. I don’t want to die.” After the first few relapses I began to hide them from my inner circle as well. I was so tired and I was so ashamed. I was so tired of explaining the disease of addiction and I was so tired of defending Kevin’s actions. I remember one night having to tell my parents that yet again my husband had screwed up and relapsed. With shame flushing my face red I told my parents and my dad looked at me with such anger and he yelled, “Get rid of him,” but I couldn’t. Kevin was fighting tooth and nail to fight this. If he had cancer and the cancer kept coming back I wouldn’t leave him. In my mind this was no different. It wasn’t easy. Often I would stumble across a poorly hidden needle when I was doing our laundry or looking for our Christmas decorations. And each discovery was a knife to my heart because it was a realization that yes Kevin was still struggling and yes he was still deceiving me. It was a realization that yes death could still be on our doorstep. Over 400 people attended Kevin’s funeral. It was the most the funeral home had ever had they told me. But sadly, in that huge crowd, only a handful of people knew of Kevin’s addiction and shock waves reverberated through the crowd when I pulled back the curtain on his life and shared how he died. Friends who had known Kevin for 30 years were dumbfounded to find out how much about his life they didn’t know. Guilt and helplessness consumed many as they grappled with this new found knowledge of their friend’s double life. Tears were shed and many friends cried to me, “Why didn’t he tell me? Why didn’t he reach out? Maybe I could have helped him.” I myself have spent many a night wondering the same thing. If Kevin hadn’t been ashamed would he have reached out more? If Kevin hadn’t been ashamed would he have leaned on his friends and family more? And if Kevin hadn’t been ashamed would he still be alive? Kevin hid his use and he hid it because he was ashamed. And in that shame, it caused him to isolate himself. He pulled back from his friends, his family, his sponsor, his recovery work. And in that isolation, the thoughts that told him he could use just one more time, the thoughts that told him he could return to the drug, they got louder and louder until they were all he could hear. Now, I want you to think of a time, a time when you have felt shame, when you have felt something that was so big and so scary you couldn’t say it out loud. Now, imagine feeling that feeling every single day. That was Kevin and that’s anyone who’s struggling with substance use. They want to share but they can’t. Shame and stigma keeps their suffering in silence. It keeps their suffering in the shadows. And it’s hard to find your way out of that darkness when there’s no one there to guide you to the light. In 2016 in Canada, almost 3000 people died from opioid overdose. Kevin was one of those people. In 2017, almost 4,000 people died from opioid overdose. That’s almost a third more than the previous year and that increase is horrifying. And currently in Canada today, 11 people will die each day from opioid overdose. Now Kevin was addicted to heroin but that did not solely define him. He was a person with a heart, a story, a life and an addiction. And like Kevin, the 11 people who will die today are also people, not just statistics. Each overdose is a person, someone’s friend, someone’s child, someone’s parent and someone’s spouse. Now you might be thinking this isn’t something that affects me but that’s simply not true. Almost one in five Canadians will struggle with substance use at some point in their life. So that means that right now, 240 people in this room might be struggling with substance use and perhaps in silence and with shame. Most likely there is someone in your life, whether you know it or not, who’s struggling. And imagine what it could be like if that struggling didn’t have to be in silence. Shame and stigma are contributing to today’s opioid overdose crisis. Empathy and compassion can replace shame and stigma. Empathy and compassion can help save a life. Now, let’s talk about a few small yet powerful things you can do to get us there. Your empathy and your compassion can help save a life. The first thing you can do is you can change the language that you use. I’m going to share with you a quote and it’s by a man whose name is Don Kohist and I love this quote. It goes like this, “Words are important. If you want to care for something, we call it a flower. If you want to kill something, we call it a weed.” And I love this quote, it just so eloquently sums up what it does to a person when we label them. In fact, I did it myself earlier when I referred to my husband as a heroin addict. And for many years, I’ve been quite open about his struggles but I’ve always called him an addict and it’s only been recently that I realized how wrong this is. By calling him an addict I reduced Kevin to only his drug use. I took Kevin out of the equation. I took his humour, his compassion, his intelligence, and I took all of that out of the equation. I can’t bring Kevin back but I can change how I refer to him and you can change the words you use. You can say someone who uses drugs instead of an addict. You can say someone with a substance use disorder instead of a junkie. You can say drug use instead of drug abuse. And you can say recovery instead of being clean. Changing the words is a small yet powerful step we can take and reducing stigma. It literally costs you nothing but it’s priceless to those who are struggling because it treats them with dignity and respect. The second thing you can do is you can get a Naloxone kit. Now treating substance use disorder it’s not a simple straight line from “addicted” to “saved”. It’s a complicated journey of one step forward, two steps back, two steps forward, one step back. The reality is people can and do relapse. Kevin relapsed so many times. Someone can overdose and die while on the road to recovery, Kevin did. And a Naloxone kit is an important tool. It can quickly and easily reverse an overdose should it occur. Someone cannot access treatment services or rehabilitation centers if they’ve overdosed and died. Now I will admit something, I’ve wanted to get a Naloxone kit for a long time but every time I’ve gone to my pharmacy, because they’re available for free at a lot of pharmacies, I’ve gone and there’s a little sign there that tells me they have them. So I start to walk up and then I freak out and I think, “What if the pharmacist judges me and thinks I’m a junkie?” Or, “What if this lady beside me in line, what if she hears my question and she judges me?” But that’s precisely the point. The more we bring this out into the open and simply treat a Naloxone kit as an important part of a first aid kit and an important tool in saving lives while someone works towards recovery, the more we can reduce the stigma surrounding drug use. So the good news is I got my kit. I went last week and I got it. And guess what? The sky did not fall in. All that happened was I got my kit, I got a brief tutorial on how to use it, and that was it. But more importantly, I took a big step in reducing the stigma that surrounds drug use. And the final thing you can do is you can tell Kevin’s story. One of Kevin’s best friends from university is a high school teacher and recently she arrived in class and she was really upset over Kevin. So she abandoned her lesson plan and instead she shared the story of Kevin with her students. She told them about her friend and his struggle with drug use and she told them how he died because of his drug use. And she cried as she talked and her students received her grief with such open arms and they began to talk. One student who’d been causing a lot of disruptions in class, she shared how her sister was struggling with drug use and the effect it was having on their family. And it quickly became clear to everyone in that room that her disruptions in class were actually due to her really tough family life. Another student shared her brother’s struggle with drug use. And as they went around the room all of the sudden every student wanted to share. My friend said it was really hard and really scary to share her heart with a bunch of 15 year olds but because she did those kids were able to unload some of the really heavy weight they were carrying. And those kids that didn’t understand each other before they walked in that room, they began to break down that wall and build connection to one another and build empathy and compassion for one another. She said they left that room more connected, more empathetic and more caring. So leave here today and tell Kevin’s story. Tell someone in your life how you heard a story about a man, a man who loved his wife, loved his children and loved his job. And tell them how he was also sick and tell them how he was a drug user and tell them that he lost his life to his illness. And tell them that you learned he was still deserving of love and compassion and empathy despite his drug use. Because the more we talk about substance use disorders the more we can reduce the stigma and shame that is associated. And the more the stigma and shame is reduced the more empathy and compassion can grow and it will be easier for those who are suffering to speak up and access help. We can save lives. Let Kevin’s story help us get there. Thank you.
Because of stigma, I was denied help Because of stigma, I was denied help

Because of stigma, I was denied help

Tina speaks about the stigma she has experienced as someone living with substance use disorder.

Because of stigma, I was denied help

Tina speaks about the stigma she has experienced as someone living with substance use disorder.

Produced by CAPSA Canada
Tina: Substance use disorder is the only disorder that I know of that you have to get better before you’re allowed to get help and that was the case with me. I have been denied services and treatment because I was still sick, especially considering mental health and mental illness. I was told by psychiatrists to get sober before I was allowed to be seen by them and I was told by treatment centres that I had to get help with my mental illness before I was allowed to be in treatment. Stigma has affected me on all levels. Self-stigma stigmatizing myself for what I think I am or I think I was. Stigma from a structural sense, so institutions, hospitals anything like that. You’re finally ready to ask for help and to try and get these treatments and to try and get better and you’re just, it’s an uphill battle. You just keep on having to ask so many different people and wait for so many different treatments and jump through so many different hoops, when all you’re trying to do is get better and get help that’s all. Ever since I started using substances, I think I always I always kind of knew that I was using them differently than the people that I knew. I didn’t either know or didn’t want to know that I had a problem or an issue for years, until it started affecting every single aspect of my life and my family and my friends didn’t want to be with me often. I couldn’t hold down a job. I didn’t want to be with me as well as well. I didn’t like who I was and I wanted to go, I wanted to not be in this life anymore and for some reason, I decided to stay and keep on fighting and get better and I did.
Sharing his story helps me heal – if it saves one kid, it’s worth it Sharing his story helps me heal – if it saves one kid, it’s worth it

Sharing his story helps me heal – if it saves one kid, it’s worth it

Listen to Jordan's story and how his dependence on pain medication led to tragedy.

Sharing his story helps me heal – if it saves one kid, it’s worth it

Listen to Jordan's story and how his dependence on pain medication led to tragedy.

Produced by Health Canada
Jordan’s mom: Jordan was irrepressible. He was high energy.   Jordan’s dad: He was a great kid. He was full of life. He was a real handful.   Jordan’s mom: He walked on his eight month birthday and he never stopped. He was born with an adventurous spirit.   Jordan’s dad: Big baseball player, skateboarding, he was really active. Kind of a typical kid.   Jordan’s mom: For the last five years of his life, I worried every single moment of every single day. Somehow, I just knew my goal was to keep him alive.   Jordan’S Story   Jordan’s dad:  Jordan was in his early twenties, he was working in construction, he hurt his back lifting some wood. The doctor prescribed him an opiate, that opiate became his focus in life.   Jordan’s mom: Once a person is addicted to a drug, it is the main thing on that person’s mind; finding it, paying for it, taking it and then finding some more. It consumes your life.   Jordan’s dad: It was so gradual but yet it was just getting crazier and crazier just his life style and he would do a job… He was working as a chimney sweep and he’d get a cheque for like six thousand bucks, gone.   Jordan’s mom: He was not trustworthy. He was unable to focus. Jordan was so addicted that he wasn’t getting enough from the doctor so he was seeking it elsewhere and he was seeking it on the street. He had stomach problems. He had sleeplessness. It was very hard on his body.   Jordan’s mom: He came to us and said “I need to detox, I need help here, I can’t handle this, I can’t manage it anymore”. We got him into a detox program. He was good for a little while after that and then the call of the drug. He couldn’t resist it, he got back into it. In the end, what happened was Jordan took several drugs, three of which were prescribed to him, and the combination killed him.   Jordan’s dad: Jordan was probably responsible for the best day of my life, you know the day he was born, and the day he died, the worst day.   Jordan’s mom: Of course when he died, our lives were just shattered. I’m still trying to figure out how to live my life not being a mum.   Jordan’s dad: When I had a son, a tremendous amount of energy was put into his life and now that just disappeared in an instant.   Jordan’s mom: We won’t have grandchildren and we won’t have him around in our old age.   Jordan’s dad: We were really ignorant of just how devastating these drugs can be and how addictive they are, especially the opiate-based drugs.   Jordan’s mom: I don’t think kids in particular understand what they’re getting into. They need to know that this can ruin their lives and, in fact, can kill them.   Jordan’s mom: Parents need to be vigilant and not rationalize behaviour changes. They need to be compassionate. If one is angry and judgmental, nothing will push a kid away faster.   Jordan’s dad: Don’t ignore the situation, don’t pretend like it’s going to go away.   Jordan’s mom: It can happen to anyone. Sharing his story helps me heal. If it saves one kid, it’s worth it. He was a normal, everyday healthy young man. He was working, he was vibrant, he was a loving person.   Jordan’s dad: Every day I think about him, just remember him, focus on the good things, the good memories.   Jordan’s mom: He was just starting his life. Had he been able to get off the drugs, he would have been fine. He would have been a successful, amazing guy.   Get the facts and talk with your kids about prescription drug abuse. Visit Canada.ca/DrugPrevention A message from the Government of Canada.
Counseling has helped me in many ways Counseling has helped me in many ways

Counseling has helped me in many ways

Listen to Karlee's story about her prescription drug use, its negative effects on her life and how she recovered.

Counseling has helped me in many ways

Listen to Karlee's story about her prescription drug use, its negative effects on her life and how she recovered.

Produced by Health Canada
Speaker 1:  I had heard her crying out in her room and I went in there and she was completely purple and blue around the mouth and I just remember thinking, “She’s not breathing.” Karlee was very loving. A little girl that liked to take everybody under her wings. Karlee always said that she was going to be a role model for her sister. And on that day we lost her. She died on us, October 17th, at 4:30 in the morning. Karlee: I had asthma quite bad and I don’t know if it was because using prescription drugs and smoking and everything else, but I literally died on my parents. My dad had to revive me, he kept me going. I never thought I was endangering myself. I was hanging out with the wrong people that were into prescription drugs. Then eventually just, “Know what? I want to try this,” and then it got to the point, like, “I need this everyday to get up out of bed. I need this to function during the day.” You wake up every day, wondering, “How am I going to get my fix?” And you’ll do anything to get it. Speaker 1: She used to steal off me. It was very hurtful, but it wasn’t the worst of it all. The worst of it is not knowing if your child is going to be here the next day with you. Karlee: I approached my mom and I’m like, “Mom, I can’t do this.” I wasn’t myself. I was missing a part of me. That was my turning point. Counseling really did help me in a lot of ways. It would make me feel whatever was bothering me I’d want to talk about, it made me feel better. If it wasn’t for my family, I wouldn’t be where I am today, that’s for sure. I have a full-time job. I have my dog. I have my boyfriend. I have a house over my head. I have lots of food in my cupboards and my bills are paid. My family’s there for me. Being a child I never, ever would’ve thought that I would have used prescription drugs, ever. Speaker 1: You just never know. It could happen to anybody’s child. She had another chance at life. I’m just so, so grateful. Speaker 2: Get the facts and talk with your kids about prescription drug abuse. Visit canada.ca/drugprevention. A message from the Government of Canada.
I was always ashamed to tell my story, but now I want to help others because I was helped I was always ashamed to tell my story, but now I want to help others because I was helped

I was always ashamed to tell my story, but now I want to help others because I was helped

Hear Meagan's story about how her prescription drug use quickly turned into high-risk substance use. Also find out how she got treatment.

I was always ashamed to tell my story, but now I want to help others because I was helped

Hear Meagan's story about how her prescription drug use quickly turned into high-risk substance use. Also find out how she got treatment.

Produced by Health Canada
Meagan’s father:

She was a typical little girl. Very popular.

Meagan’s mother:

She loved kids, loved babysitting. We had a wonderful relationship.

Meagan’s father:

Don’t take it for granted that they seem happy in front of you, that it can’t happen to them. It can happen to any person’s child.

Meagan:

I can’t say why I did it, but I was just fed up and mad. It made me feel tough. Once I started using opiates, I changed into a completely different person. I didn’t care about anybody. I would steal. I would lie.

Meagan’s mother:

And it didn’t take long. I’m not talking weeks, it was just days.

Meagan’s father:

Yeah.

Meagan’s mother:

And my daughter was hooked.

Meagan:

I would wake up in the morning and my legs would be throbbing. You’re throwing up. You’re freezing all the time. It’s excruciating. And it got me so bad. It got me so bad. I didn’t know that. I didn’t think I was going to be able to get out of it.

Meagan’s father:

You have your child just disintegrating in front of you.

Meagan’s mother:

Not even my friends and family understood. Nobody understands. Nobody gets it.

Meagan:

It feels like I woke up one morning and I just said, “This is enough. If I want to do drugs, I’m going to lose my baby girl.” I went to my parents and I had told them that I needed help. And that’s when we started seeking information about the treatment center. I met a counsellor and she changed my whole life.

Meagan’s father:

Totally rejuvenated to a person that we were able to talk to. To see her cooking a meal, it was just amazing to us to see her doing that.

Meagan:

I have now been clean for almost a year and a half. I’m trying to get my grade 12 right now.

Meagan’s father:

Meagan has always had the desire to get married, settle down. I hope that I’m able to walk down that aisle.

Meagan:

And I used to be ashamed of telling people my story. And now, I just want to help people because I’ve been helped. I am feeling what it’s like to be normal again.

Narrator:

Get the facts and talk with your kids about prescription drug abuse. Visit canada.ca/drugprevention. A message from the government of Canada.
Addiction is not a choice – trauma and addiction changes your brain Addiction is not a choice – trauma and addiction changes your brain

Addiction is not a choice – trauma and addiction changes your brain

How trauma impacts the brain: reducing stigma around addiction and substance use.

Addiction is not a choice – trauma and addiction changes your brain

How trauma impacts the brain: reducing stigma around addiction and substance use.

Produced by CAPSA Canada
Speaker 1: Growing up, I didn’t feel safe at home. And I was picked on a lot at school. When I was 14, I tried alcohol for the first time. I loved how it made me feel. This is how I’ve always wanted to feel, like everyone else. I thought I was managing my life with my drinking. However, I became more isolated. Over time, I found myself lying to loved ones, hiding alcohol, and keeping secrets. All so that I could drink without judgment. I never wanted to get to the place where people would say- Speaker 2: “She’s ruining her life.” Speaker 3: “Look at that drunk.” Speaker 4: “Why would she choose alcohol over her family?” Speaker 5: “I don’t get it.” Speaker 6: “Why is she drinking herself to death?” Speaker 3: “Worthless.” Speaker 1: I started to feel that I was doing this to myself, and alcohol was more important. How did I get here? Did I really choose addiction? I chose to take a drink, like most of my friends, but I didn’t choose to have an addiction. I realized that living well for myself was the key, which inspired me to learn more about what made me different from my peers, why I became addicted to alcohol, but they didn’t. The part of our brain that keeps us well can have devastating effects if it doesn’t work properly. The area of the brain directly behind your forehead is known as the prefrontal cortex. This area is kind of like the brain’s executive control. One of its major roles is regulating different pathways in the brain, such as the fear and reward pathways. For example, when we experience traumatic events, the prefrontal cortex activates the fear pathway and signals to another brain structure called the amygdala, which processes fear. In turn, the amygdala may activate another brain area known as the hippocampus, which stores information about threatening people, places, or things. In the future, when we encounter them, the hippocampus will remind us to avoid them. On the other hand, it seems that the reward pathway is less active after trauma. It’s possible that substances such as alcohol or heroin are used in an effort to feel better. So what does this mean? Why did my brain think that alcohol was a good coping strategy? Scientists now believe that while the reward pathway is underactive following trauma, the fear pathway is overactive. Remember the prefrontal cortex? Well, it can’t do its job properly to balance the two pathways. So my brain presented the solution to keep drinking, which increases reward and decreases the fear I lived with. At this point, it wasn’t about being happy. It was about surviving. Learning that there were real changes in my brain allowed me to be kinder to myself and realize that addiction was not my choice. That being said, I don’t want to go back to who I was when I started drinking. When I thought I was the problem, there wasn’t much to be done. When I realized something was wrong with my mind, then I knew change was possible. I learned that if I could change my mind, I could change my life and form a new path for myself. Even though we talked about how trauma can lead to addiction, there are many other factors that can also contribute to someone developing an addiction, such as genetics, personality, and mental illness. There’s so much value in learning about addiction. And I believe it is the key to reducing stigma. Stigma around addiction is very real, and it is the biggest barrier for people trying to seek treatment. Join the movement with thousands of others working to reduce stigma around substance use and addiction. Visit capsa.ca for more information.
See the person, not the addiction See the person, not the addiction

See the person, not the addiction

Listen to the stories of 12 people with firsthand or family experiences of drug use. Through these stories, we hope to build compassion, encourage empathy, and contribute to a community that treats all people with dignity and respect.

See the person, not the addiction

Listen to the stories of 12 people with firsthand or family experiences of drug use. Through these stories, we hope to build compassion, encourage empathy, and contribute to a community that treats all people with dignity and respect.

Produced by Northern Health BC
Jolene: 

Addiction’s a really hard thing.  I know there’s really – there’s conflict, right? People think that it’s a choice, whereas I think it’s more of a disease. It’s a fight for that person.

[music]

Intertitle

Stop Stigma. Save Lives. The impact of empathy.

Sheldon: 

To walk a mile in an addict’s shoes would go a long way. And not so much as to walk in their shoes, but, you know, to be beside them or to know what they’re going through, and why they’re at that point in their life.

Jolene:

When people judge me for being a working girl, it hurts. They just take one look at me and I know exactly, you know, the reaction they get on their face is like: “Oh, gross” or “Oh, ew, look at her …she’s an addict,” or “she sells her body.” It hurts a lot, you know. I’m a good person. If they really got to know me, they’d really like me.

[music]

Intertitle

Stigma against people with addictions can sometimes do more damage than the addiction itself.

Jolene: 

The way I’d like to be treated is with respect and dignity, and like a human being—like everybody else gets treated. Instead of, like, just looking at me and judging me for my addiction and my appearance, you know, and for being native.

Jeremy: 

To be known as Jeremy, not “Jeremy the drug addict” or “Jeremy the thief” or whatever.

[music]

Intertitle

Simply treating people with respect and changing our language can help save lives.

Charlene:

When you see injustices, when you see things that aren’t right, when you see that people are being treated poorly. If you can make a change for the better for anybody, I think we owe that to our community members.

[music]

Intertitle

Stop Stigma. Save Lives. Learn more: northernhealth.ca/stigma

Jolene: 

We’re all made to love and care for people. Why can’t we show everyone – everyone – that love and care?
Elsa’s Story Elsa’s Story

Elsa’s Story

Elsa is a social worker at a harm reduction organization. Every day she offers support and compassion to people with substance use disorders. Let’s listen to her story!

Elsa’s Story

Elsa’s Story

Elsa is a social worker at a harm reduction organization. Every day she offers support and compassion to people with substance use disorders. Let’s listen to her story!

Produced by Health Canada: Canada.ca/opioids
Audio available in French only.

Narrator: 

In Plain Sight is a Health Canada audio series that explores the personal stories of people affected by the opioid crisis.

The most recent data shows that every day, approximately 12 people die from opioid overdoses in Canada.

We see this on the news. We know that it’s happening. We know that it’s real. Yet, we tell ourselves that it couldn’t happen to the people we know, the people we work with, the people we love. That it couldn’t happen to us.

The reality is, the opioid crisis is happening right before our eyes, in plain sight, and it can affect anyone. There are thousands of stories waiting to be heard.

Elsa is a social worker at a harm reduction organization. Every day she offers support and compassion to people with substance use disorders. Let’s listen to her story…

Elsa: 

My name is Elsa. I’m a social worker. Basically, what I do is work directly with people according to their needs, but always in terms of their substance use. We can offer to set up a meeting with a social worker to help them achieve their goals, no matter what those are – reducing their substance use, quitting, asking questions, getting information, or asking questions about a family member who’s using. We also provide all the sterile equipment such as crack pipe kits, injection kits, naloxone kits, and always with information and education. But we also go out into the community of substance users. We meet them in their environment, always with the aim of improving their living conditions and meeting their needs in terms of the distribution and equipment they need. The person is truly at the heart of our interventions and our mission; our priority is always the well-being of the person being helped.

My biggest challenge is to get people who want to get involved, but who have all too often been excluded and judged, to see their experience really as something positive, something they can pass on to someone else. So that it becomes an experience that helps them and others as well. Basically, my work allows me to encourage those same people to deliver their message, claim their rights, name the injustices they have suffered. It’s always a matter of giving those people back their power over their lives, their rights, their voices, and that’s a challenge in itself, because when people feel socially excluded, it’s not easy to get them to consider their experience as a form of expertise that can help others. To come to that awareness is one thing; and then there’s connecting with other people who are using, not necessarily the same substance, not necessarily the same experience, not the same age – that’s another challenge. You know, there are clashes in the kinds of drug use, the kinds of substances, even the way they’re administered. Someone who injects, someone who smokes, it’s very different, even though there are a lot of similarities, but for the people who are living that life, it’s hard, you know, to create a bond of trust with someone who isn’t like them or isn’t using the same drugs or isn’t the same age.

I think that through my role, really, I encourage them to consider their experience as meaningful, you know. And that allows them to see another side of the story, because for some people, it’s the first time in their lives they’ve been told it’s something positive, you know, a kind of expertise. Whereas they’ve always thought of it as the most difficult period of their lives, a time that taught them nothing. You know, they’ve often experienced a lot of judgment and rejection from their own family, you know, from their job. They’re homeless, they’re in a really tough situation, and then they realize for the first time that they have rights. There are a lot of users, you know, there are a lot of people who want to claim these same rights. So that makes community solidarity a challenge, but it’s not impossible. I see now – and it took me awhile – that it’s something that builds up gradually, but now there’s a good solidarity and a respect for the experience of others, no matter where they come from, and when someone even more marginalized than they are joins the group, they get an unconditional welcome. So it’s even more beautiful, you know. It’s a worthy challenge, I think, that it’s a long-term thing, something to be achieved in the long run, it takes patience. You know, solidarity within a group doesn’t happen in a single meeting. They come because they know it’s an opportunity to get together with other people with lived experience, but they don’t necessarily know where it’s headed.

In order to help people who use drugs, you have to adapt a range of services for a range of people. The same goes for access to substitution therapy, now called opioid antagonist therapy: people aren’t offered many choices, if they’ve tried methadone and it didn’t work, if they’ve tried Suboxone and that didn’t work either, what can we offer? What can we offer a person who’s decided to take a safer approach to their substance use, who’s seeking treatment as a positive alternative for their survival and their health, and who voluntarily puts aside the risks of using a contaminated substance, but who finds themselves with no other choice than to repeat a treatment that doesn’t meet their needs? Treatment restrictions can have far more dangerous consequences, especially with respect to the unsafe supply of substances. Although doctors can prescribe medical heroin, which could be considered access to a safe supply, very few do. Because, let’s face it, these days, when you get your drugs in the traditional way you’re not talking about a safe supply. You’re at high risk of using a contaminated substance. Not to mention the conditions, not forgetting the conditions related to substitution therapy, the whole model of reward and punishment, it really doesn’t meet the needs of the person who is using. In fact, the person has to go to the pharmacy every day for safety and supervision purposes. The pharmacist will make sure that the person actually takes their medication properly, so there’s really a mouth check. The person has to take urine tests. At any point, have we taken the time simply to ask the person what they need? If the person’s urine test comes back positive, ultimately they can be cut off from treatment and lose the so-called privilege of getting a prescription for two or three days’ worth of medication so they don’t have to go to the pharmacy every day. We talk about patient safety. I see the opposite, because when you deprive someone of the treatment that person wants—and you have to understand that when they go for treatment, they may already be having withdrawal symptoms. So they’ll wait until morning to go for treatment, but what about a person who’s experiencing withdrawal symptoms and who’s been cut off from treatment—well, where are they going to go to get supplies? In terms of safety, there’s nothing less safe than that. It pretty much guarantees that they’ll go get a fix in their familiar environment instead of seeking treatment. There are people who use while they’re in treatment – it’s a fact. I think we have to start from there. Because if we don’t focus on what the person needs, well, we’re jeopardizing their safety.

People undergoing treatment often face judgment even when they go to the pharmacy. Some pharmacies require people on methadone or Suboxone therapy to go through to the back. That’s quite something for them, being made to feel different. And I ask myself, how do we explain that people who have a prescription for morphine are free to buy their pills in considerable quantities and take them home without ever having to take a urine test, and without necessarily having complete information about what is prescribed? There’s a real split between the two, and don’t think the people going for treatment don’t see that. You know, they feel like they’re being monitored, and it’s hard for them, feeling the judgment of the pharmacist every time they show up to pick it up. And asking someone to pick up a prescription every day, that doesn’t take the person’s experience into account. When you’re living in chaos, it’s not easy to stick to a routine. You know, it takes a long time to get there in the morning, and then you have to wait. Getting there in the morning doesn’t necessarily mean you’ll be the first one seen, and it happens, you know… people have told me they wait much longer than others for their treatment. For me, that’s really a big gap, because I think we should offer the person diversity, choice, and support when it comes to treatment, there are people who get put on the treatment without necessarily knowing what it really is, without being warned that they’ll experience withdrawal symptoms every time their dose is reduced. There’s a real need for support and information for people who want treatment. There is also the fact that, well, we can prescribe medical heroin, but very few doctors do it. So that’s not an option either. I know there are studies on injectable treatments, but we’re not there yet. You know, it’s harder, but when you consider that people are using unsafe substances and dying as a result, it’s important to think seriously about changing that, because we’re talking about people who are motivated to seek treatment. These are people who have already come to that point. We’re not talking about people who aren’t interested in treatment. They are at that point, they want it, but they don’t have the information, they don’t know how it works. They feel unsupported, they feel judged at the pharmacy. As far as I’m concerned, this is a big problem.

The stigma attached to substance use, and by extension to substance users, is probably the biggest barrier in our work. Yet we all know that substance use is everywhere, you have to forget the image of the person injecting themselves in an alley between two dumpsters. Stigmatization, people who use face it every day, and even those who quietly leave that environment still experience it. It’s very discouraging, you know, to make some progress, to stop using, and still feel you’re being judged by people—family or even, you know, the police, the hospitals. There’s a sort of loss of hope in the person… It’s difficult when you make the journey, and you end up, you know, recognizing that “I did it,” yet you feel that people still look at you the same way, that you’re still perceived as someone who uses drugs and who is problematic. That’s just about enough to make a person want to give up. Fortunately, I’ve seen many who didn’t go down that road, but decided instead to defend their rights, but you have to realize that  a person who’s stopped using and is on the road to recovery is not necessarily the strongest person in the world. It’s still a fragile time for the person, and the way people look at them carries a lot of weight. Stigmatization, you know, we’ve seen it, is being stopped and searched as you cross the street, while other people cross the street and don’t get stopped. It’s also going to the hospital with an injection-related abscess and being treated by the staff as if you were contagious, and dangerous. It’s going to the pharmacy and having to go through to the back; it’s being told “you just have to stop, it’s a matter of willpower;” it’s being labelled a troublemaker. Sure, using when you’re homeless is a lot more visible, but do we really try to put ourselves in that person’s shoes when we find it personally upsetting?

People who are using face discrimination on a daily basis because of their social status, and from different sides, like the justice system, the health care system, the welfare system, their family, their friends… and it can even be at the grocery store, it’s literally everywhere.

When you’re in the business of advocacy, you know you’re not always going to be in public favour. We’re dealing with several issues. We’re talking about solutions, and they’re not necessarily the solutions that the average person would come up with. That’s the most difficult part, I would say. The current system is prohibitionist, and by criminalizing drug use it has created a judgmental atmosphere that infantilizes and stigmatizes people who use drugs, because they are perceived as a burden or a threat. I think we really need to change our perspective, both individually and collectively, and educate ourselves not only about drugs per se, but also about the harm reduction approach, which we don’t often see but which has shown the most significant results in terms of health promotion and implementation of safer practices for overdose prevention. Right now we’re in the middle of a public health crisis; people are dying, it’s literally a matter of life and death. Behind the overdose statistics that we see… it’s not just numbers, you know, it’s people, and, especially, it’s mothers, fathers, aunts, grandfathers, friends, colleagues, people who may have been closer to you than you think. The most important message, I think, is that no one is safe. We all have someone close to us who’s using, whether we know it or not, but it’s not necessarily problematic for everyone. I think that regardless of whether or not you’re using, you really need to be informed, because it can happen to you too…

I never thought this job would be easy, but let me tell you, when I get home safe and sound I sometimes think about the people who can’t even count on the word “safety.” Those people are in survival mode. I understand the survival instinct, and that allows me to better understand their reality. When you have nothing, what do you do? When we try to put ourselves in their position, the social workers, even we sometimes say to ourselves that we couldn’t do it, but seeing the positive impact we can have on their lives, even when they have absolutely nothing, as far as I’m concerned, that’s my paycheque.

When it affects you personally, especially in a job like this, it’s hard to,you know, you have a unique relationship with the person. You’re not their mother, you’re not their friend, you’re not a co-worker; you’re the person who helped them with their substance abuse. When this person dies because of their substance abuse, you wonder what you could have done to change that, you know. But the reality is that there was nothing to be done. All we can really do is be there. But sometimes those deep wounds can’t be healed. I’m not a doctor, I’m not a psychologist, and sometimes, despite all the professional help they may have access to, a person’s unhappiness can be really deep and difficult to reach and heal.

I think that as a social worker, you have to be constantly aware of the emotional work you’re doing. When we’re working with people, we always put up a barrier; we don’t take on their emotions, you know, we’re there to put ourselves in the other person’s place, to understand and support them. Because if we take on their emotions, we’re not helping them. If the person is crying and I start crying, that won’t do any good. But the emotional work, sometimes you’re not aware of the magnitude of it until you get home and realize that you experienced, you know, something that … People come to see us every day and tell us about the darkest moments of their lives. We never let them go, there’s always something going on. So it’s really important to consciously get some distance when you get home. I think, you know, there are some social workers who’ve lost the ability to keep that separate. I haven’t been doing this for 20 years. So I’m still working on that, but it’s really important, because emotional fatigue can set in. You see it a lot among community workers. It happens pretty regularly: the social workers take some time off, then they come back to work. It’s important to look after our mental health. And I think it’s also important to be well supported by your organization. In my organization we don’t talk about sick leave, we talk about wellness leave. It’s a simple distinction, but it changes the way we look at things. We’re encouraged to take time off when we don’t feel right, not just when we have a sore arm or a headache. Because in our line of work it’s important to really be present and ready to listen to the person, regardless of how you yourself are doing and how you might be feeling on any particular day. It’s important. And I think the priority is to ask yourself, “Am I ready to go to work today and to listen to people? Or am I upset about something, or do I feel like I didn’t get a wink of sleep all night and might not be the best advocate for the person?” It’s a job in itself to consider and recognize those limits. It’s something I’ll probably be working on all my life. But that’s part of the job. That said, I do it mostly because I’m intrinsically motivated. For me, it’s a passion. So for sure there are emotions involved. So I have to try to figure out what the emotion is and what to do with it, you know. I find that doing advocacy work is a great way to deal with emotions: to focus on the solution, not the problem … to keep moving forward. It’s fun for me, you know, to keep moving forward and finding solutions, but it’s also nice for people who are beset by problems to believe that yes, there is a solution. And there are rights to be defended, claims to be made. You know, you have the right to be defended because you are a person like any other. That’s what really helps me to channel my emotions, to kind of transform them into motivation, which helps me to advocate on behalf of people who are using.

Narrator: 

Tragically, the number of opioid-related deaths in Canada continues to increase each year. This crisis is affecting the health and lives of people from all walks of life, all age groups and all social and economic backgrounds. Elsa shares her thoughts on what could be done to help reduce the number of opioid-related overdoses and save lives.

Elsa: 

I believe we have to hope for change at both the structural and the legislative level, as well as a change in our level of investment in the repressive and prohibitive model, which has shown that none of the measures implemented so far seem to reduce mortality rates consistently. At the moment, the legislative framework for substance use doesn’t allow us to save lives, and more important, it criminalizes a whole community of people. Remember, people who use illegal drugs are still considered criminals in Canada. But are they really criminals? If we label them criminals and put them in jail, are we really promoting their health, are we really helping them? They are people just like you, and if one day you find yourself in a precarious situation and you start using, whether or not that becomes problematic, I’m convinced that you wouldn’t want to be seen as a criminal. I believe we have to act, and not lose sight of the source of the problem. Beyond criminalization, there’s a real problem with the supply of substances.

Currently, the supply of contaminated drugs, which aren’t subject to any form of quality control, is a determining factor in overdose deaths, and it’s also what allows users to keep using. Why is drug contamination dangerous? Because we think the risk has to do with street drugs, street users, but we know that people who use drugs don’t all come from that background, and if they don’t, they may not be aware of the resources. Basically they could end up, for instance, in a situation where one weekend they decide to use cocaine recreationally (which happens, we all know it), without even considering that it might be contaminated, without knowing that there are organizations distributing test kits to detect the presence of fentanyl. So they’re at risk of overdose, and they may not have the information they need to avoid this kind of situation. If I ask you this: If you use twice a year, have you thought about having your naloxone kit with you? The supply of contaminated drugs and the criminalization of this drug use put you at risk of overdose and label you as a criminal. We need change, and fast, because the number deaths is now in the thousands.

I had the immense privilege of working with someone whose journey amazes me to this day. I watched them grow and recognize their strengths, through all the opportunities for involvement they had. The truth is that this person taught me a lot about myself. Considering the sheer weight of their experience, the tears they shed when they shared their story with me, it’s impressive to see how adaptable human beings can be in survival mode, and how, too, they can recover. Today, this person draws on their experience, their expertise, to advocate for people who have travelled a similar path. I think the important thing here is that there’s hope in every story… you just have to find the positive in the details, because if we don’t believe it ourselves, we can’t help the person achieve self-worth and self-trust. It was probably through that person that I learned the most.

Narrator: 

Problematic opioid use is devastating Canadian lives. The numbers are tragic and staggering. These are the stories behind the numbers. This crisis has a face. It is the face of a friend; a co-worker; a family member. Meeting those eyes, and seeing our own reflection is the first step toward ending the stigma that often prevents people who use drugs from receiving help. To learn more about the opioid crisis, visit Canada.ca/Opioids.

This audio series is a production of Health Canada. The opinions expressed and language used by individuals on this program are those of the individuals and not those of Health Canada. Health Canada has not validated the accuracy of any statements made by the individuals on this program. Reproduction of this material, in whole or in part, for non-commercial purposes is permitted under the standard Terms of Use for Government of Canada digital content.
Melissa's Story Melissa's Story

Melissa's Story

The reality is, the opioid crisis is happening right before our eyes, in plain sight, and it can affect anyone. There are thousands of stories waiting to be heard. This is where Mélissa’s story begins…

Melissa's Story

Melissa's Story

The reality is, the opioid crisis is happening right before our eyes, in plain sight, and it can affect anyone. There are thousands of stories waiting to be heard. This is where Mélissa’s story begins…

Produced by Health Canada: Canada.ca/opioids
Narrator:

In Plain Sight is a Health Canada audio series that explores the personal stories of people affected by the opioid crisis.

Every day, approximately 11 people die from opioid overdoses in Canada.

We see this on the news. We know that it’s happening. We know that it’s real. Yet, we tell ourselves that it couldn’t happen to the people we know, the people we work with, the people we love, that it couldn’t happen to us.

The reality is, the opioid crisis is happening right before our eyes, in plain sight, and it can affect anyone. There are thousands of stories waiting to be heard.

This is where Mélissa’s story begins…

Mélissa:

I had a good job as a client care attendant for people, uh … who had terminal bone cancer. I had a great condo, a nice new car, a sports car, Tiburon, manual. My family didn’t think I’d get it, but I got it. It was a point of pride for me. I had lots of good friends, and I used coke occasionally. And my family relationships were going really well.

When I was 14, in high school, I hung out with some guys from Ottawa, and we did speed. When I was 18 I met a guy, a serious relationship that lasted 7 years. We broke up because of cheating, and then I started to work as an escort because it paid well. I started putting ads in the newspaper. I did some porn, and that led me to organized crime. I felt safe with them: if ever anything happened to me, I just had to call them and they’d take care of it.

That’s when one of them moved in with me. I wanted to help him out—little did I know what that would involve. After he OD’d, I saved his life. And by way of thanking me, he paid my rent and introduced me to heroin, which he bought for me. I was 24 years old at that time.

I realized things weren’t right when I was 28. I was doing heroin, crack, speed, oxys and fentanyl. It all fell apart when I lost everything: my boyfriend, my apartment, my friends, my furniture, my clothes and my personal hygiene. I was ashamed of myself. It got to the point where I was squatting in abandoned houses with no heat and no running water. I owed money to the drug dealers and the government.

I defrauded the banks by putting empty envelopes in the ATMs. I had about 20 different credit cards, with limits from $100 to $5,000. I lost my driver’s licence. I now have a criminal record, and as everyone knows, when you have a criminal record you’re stuck with minimum wage jobs for the rest of your life. My car was repossessed by the company because I couldn’t make the payments anymore. I was 28 years old, I went bankrupt, and I was on probation for the next three years.

So here I was at 28, on the street, no housing, tons of debt, no car, tons of family problems. I didn’t know what to do. My instinct went into survival mode. Rule number 1 was using. Every hour, every minute, and every second of the day, I had to get my fix. I’d stay with one person, then another for a few days at a time. Sometimes I had no place to sleep, so I’d sleep on a park bench, in any old park.

I had no hygiene, and I weighed 80 pounds. I’m 5’ 6”, so technically I should weigh 125 pounds. I was literally skin and bones. When I had no money for drugs, I turned to prostitution, or easier yet, I slept with the dealers in exchange for drugs.

Using is truly a demon that thinks for you, acts for you, and controls you in an incredibly cruel way. It literally tears you apart. I used with several people. And people will steal from you, they’ll manipulate you to get your stash. When you live on the street, your life is in constant danger. I got into even more trouble with the law—another probation, for one thing—and had even more family problems.

I lived on the street for three years. After three years, I was literally exhausted, both physically and mentally. In January 2018, I started therapy for the first time in my life at the CRDO [Centre de réadaptation en dépendance de l’Outaouais]. I stayed for two weeks, because I thought I’d be cured when I finished therapy. Therapy is really hard when you’re using. You’re scared, you don’t know what to expect. It’s change, and sometimes you’re not ready to change.

I had relapse after relapse—you always return to your old patterns of consumption. In May 2018, I went back into therapy and successfully completed a 38-day program. You’re safe in therapy. I succeeded and I’m proud of it. You learn a lot of things in therapy, but the most important thing when you come out is how people react when they see you: you’re healthy, you’ve gained weight, you don’t have dark circles under your eyes, it’s all wonderful. I’m fine now, but I relapsed on the 75th day. Why? Because I fell back into my old patterns of consumption.

What I’ve learned about myself is that I’m beautiful, that I can be happy without drugs. I have to think of myself before others. It’s important to talk to someone when things start to go wrong. I got my independence back. Now, at 32, I have my own apartment, I cook for myself, I’m important, and it’s true that sleeping on something often brings a solution. I weigh 115 pounds. I haven’t used in 2 months and 2 days. It’s hard work, but it’s worth it. Being happy and not using is the best gift I could have given myself.

Another thing I learned is that when I was using, I had lots of friends, and now my old friends think I’m boring—and that’s normal, I’m not using anymore. I’ve built a new circle of friends, I have confidence in myself and that’s the important thing. To society, since I have a criminal record, I’m labelled a criminal. People are too quick to judge: when you’re using, people call you all kinds of names—slut, cow, junkie, bitch, etc. Now that I’m sober, people see me as a good person who knows what she’s doing, and also, importantly, a responsible citizen. I also belong to L’Addict, an association for current and former drug users.

I’m leaving on December 30, 2018, for a three-month therapy program in Ottawa, and I’m proud of it. This will be my challenge for 2019. I’d like to say that yes, it’s hard, and no, it’s not easy, but take the time, it’s worth it. I’m doing really well and I want things to get even better. After my three months are up, I’d like to get my driving licence back, finish paying off my debts, and be very happy and especially smiling. Don’t be afraid to ask for help—it’s worth it. Good luck, everyone. My name is Mélissa C.

Narrator:

Problematic opioid use is devastating Canadian lives. The numbers are tragic and staggering. These are the stories behind the numbers. This crisis has a face. It is the face of a friend; a co-worker; a family member. Meeting those eyes, and seeing our own reflection is the first step toward ending the stigma that often prevents people who use drugs from receiving help. To learn more about the opioid crisis, visit Canada.ca/Opioids.

This audio series is a production of Health Canada. The opinions expressed and language used by individuals on this program are those of the individuals and not those of Health Canada. Health Canada has not validated the accuracy of any statements made by the individuals on this program. Reproduction of this material, in whole or in part, for non-commercial purposes is permitted under the standard Terms of Use for Government of Canada digital content.
Donna’s Story Donna’s Story

Donna’s Story

Donna reflects on her relationship with her daughter who struggled with substance use. Let’s listen to Donna’s story… 

Donna’s Story

Donna’s Story

Donna reflects on her relationship with her daughter who struggled with substance use. Let’s listen to Donna’s story… 

Produced by Health Canada: Canada.ca/opioids
Narrator: In Plain Sight is a Health Canada audio series that explores the personal stories of people affected by the opioid crisis. The most recent data shows that every day, approximately 12 people die from opioid overdoses in Canada. We see this on the news. We know that it’s happening. We know that it’s real. Yet, we tell ourselves that it couldn’t happen to the people we know, the people we work with, the people we love. That it couldn’t happen to us. The reality is, the opioid crisis is happening right before our eyes, in plain sight, and it can affect anyone. There are thousands of stories waiting to be heard. Donna reflects on her relationship with her daughter who struggled with problematic substance use. Let’s listen to Donna’s story… Donna: She suffered from, from symptoms of anxiety and mental illness for years before she was finally diagnosed. She self-medicated with OxyContin that she was prescribed. And she was very honest about it, she was, “This works, this works with my social anxiety.” And in my naivety I said that’s great, you know, let’s have you stay on that, and you’re functioning! You’re functioning well, you’re perfect, you’re easy to get along with. And then the doctor cut her off of course when she said to him, you know, “this is what I’m using it for”, and he said, “well I won’t prescribe it for that”, and actually fired her from his practice. And then she turned to the street drugs and that was the downward spiral to the point where she lost everything. Her children, her home, her relationship, everything, and ended up living on the streets, and becoming your stereotypical substance user, you know, the one that you want to cross the street to avoid. You know, and my experience with her was to just practice tough love, and that just pulled her down ever further. By the time I realized how dangerous what she was doing was, it was already too late, and I couldn’t get to her to try to turn anything around. And then like I said, it was a matter of, you know, getting the phone call from the hospital saying you better come, we don’t know if she’s going to get up off the operating table. We’re going to amputate her legs to stop the necrotizing fasciitis. And, and by the time I got there, they had finished the surgery itself and said, you know, there’s nothing that we can do to stop the infection. It had already gone into her internal organs, and she was going to lose her life from it. And then it was just a matter of her saying to me, you know, you really need to know what addiction is really all about. And, for the remainder of her days that’s what she did with me, is she talked to me about what her issues were, the underlying causes of her needing to take drugs. And, it was an eye-opener. When she first died, I, you know, her wish was for me to go out and to be able to help other moms and dads to understand what their children are really using drugs for. And it’s not for pleasure and it’s not for fun, it’s not for, you know, just – keeping up with your peers. Once, once you get started on something it’s very difficult to turn away from it especially when it comes to opiates, and the differences that it makes in a person’s body. That’s been my biggest challenge, is to let parents know that it’s not just a willful behavior, and something that they can stop. We really need to work hard to understand what opiates do in a person’s body, and the dependency that’s created out of it. You know, and parents just, they find it easier — and I personally found it easier — to practice tough love then to delve into a problem that nobody’s been able to solve over decades. And, that all was back when opiates were, I’m going to put it in the terms of “clean drugs” because they were prescribed drugs. And now, what is out there on the market, I mean, it’s not even, people don’t even have a chance to get addicted to the drugs. They die before they even use their second dose in a lot of the cases. So, it’s not the same crisis as what it was when I was dealing with my daughter I… Parents today don’t even have the chance to practice tough love, or even decide, to decide to use it, it’s just automatic death and you know, they, they get that phone call that their child is dead rather than their child is addicted. I mean, I had the chance. I blew it. But parents today don’t even have that chance. In most cases, I don’t think it is possible to see it coming. You know, a kid goes out to a party and somebody says, “hey, try this”, and they do, and it could be anything from cocaine to, you know, a pill party, and fentanyl is laced into the drugs, and they take it, they’re opiate-naive and they’re gone, they’re dead. If I had it all to do over again with the knowledge that I have today, and I do do this with my grandchildren, and with my nieces and nephews is, I’d just be completely open and honest. I inform them of the crisis, I let them know that the bad drugs are out there. You know, and to be very, very careful of what they’re doing and what they decide to do. I’m not naive enough to think they’re not going to try drugs. I don’t want to see another member of my family die from that, and it’s just warning them, letting them know how to use naloxone, to never use alone, to give all the precautions out there to them. Give them all the tools in the toolbox, and let them know that, you know, I’m an open book. You can ask me anything, you can tell me anything, and I’m only here to help. I don’t criticize, I don’t stigmatize, I wouldn’t do any of the things that I did to my daughter. It’s just a matter of being there, having an open discussion, being available for someone to reach out to. You really cannot have high morals and put yourself above this crisis. It’s deadly. Narrator: Donna dealt with problematic use of prescribed medication herself. Even with that experience, she found it difficult to relate to what her daughter was going through. Donna: You know, I was on prescribed OxyContin, I was on Neurontin, I was on Effexor, Wellbutrin, all at the same time and I drank. And totally addicted, and I just stopped cold turkey. I was able to do it, and it wasn’t pleasant, it wasn’t pleasant for the people around me. But I was able to do it. My daughter didn’t have that opportunity, instead of working with her through that I criticized her and stigmatized her and… I mean, I was responsible for taking her children away from her and putting her in jail. So, the policing aspect of it, or the criminality aspect of it is, really, what caused her to turn away from asking for help from any of us. And trying to fend for herself when she’s in crisis mode already. So, no, it’s not the answer, that’s not the way to go. I, I do believe that health and social and mental wellness is, is absolutely the medicines that are needed to combat this crisis. I think it’s important for people to be able to freely speak about their own battles with addiction. And I think that that, taking it out of the closet is the only way that we’re going to be able to solve this crisis. With the way that we treat people who use substances, we force them to keep it hidden, and like I’ve said many times that’s what kills them. We can’t solve something that we can’t see. If we can bring it out in the open and discuss it from the perspective of the people who are using the substances and also the people who are trying to help them so that we are actually understanding what it is that we’re trying to help, rather than just doing what we think is needed to be done, that’s when we’re going to come to the proper solutions. I mean, in my experience now, in running the underground overdose prevention sites, I was getting lawyers and judges, coming in just to be watched while they use their substance. So, creating that open atmosphere kept them safe. But still, I had to do it underground, so it wasn’t as open as what you might think. People are ready for help. People are ready to get off their substances, but we need to develop a system that will draw them in and make them feel comfortable, so that they aren’t using in their bedrooms. We had, a young boy, as young as 13, come and ask us for help. And, it’s a matter of accepting the fact that they’re doing it anyway, that they need to be supervised so that they don’t overdose and die, and to provide all the other… arms of health care and social care and mental health care at the same time. This was a boy who was from a good family, had broken his, well, had shattered his leg, and had been on opiates for the pain, and just could not wean himself away from it, and couldn’t speak to his doctor, and couldn’t speak to his family, about the fact that he was going through painful withdrawal. He was told to just buck up and put up with it and get over it. But he went to the street and he started using street drugs. And he was stealing from the home and stealing from the family to get the money to buy these drugs. And, and just continued. Instead of, instead of, you know, punishing the child for doing all these bad things to get something that he absolutely needs, it might have been a better situation if they had said, “Okay, why are you stealing? Why are you selling everything in the house? Why do you still need the drugs?” And then go to the doctors and say okay, we need to wean him down, cut or titrate him down, in a matter that, that is going to allow him to not be ill while it’s happening. And we have to pay attention to this and we have to monitor what’s going on. In hindsight I would go all the way back with my daughter and say, “Okay, you fell down the stairs and you’ve been given OxyContin and you’re addicted to it now. Let’s go to the doctor, let’s go to the addiction clinics, find one that works for you where we can… not have you go through the painful withdrawal and you know, and everything else and just bring you down on your dosages until we can actually get you off”. I think the first thing that I would caution a parent to do, is to not make it what they expect to happen. It has to be the values that the person who’s using the substances wants to attain. And that might be using for the rest of their life but being able to manage in society at the same time. You cannot expect people to be what you want them to be. You have to allow them to be what they want to be. And… in my daughters’ case, after she learned that she was going to die, she said, “I just want to be peaceful. I don’t want the demons running around in my head anymore and I don’t want the pain from all of the injuries that I’ve caused myself. I just want to feel at peace.” And knowing that she was going to die regardless, I had to accept that, you know? I had to accept the fact that she was going to continue using substances until the day that she passed away. It’s her choice, it’s not ours, it’s not our life to live. Yes, I want to keep them safe. I want to keep everybody alive, but… it is a matter of it being their choice, and when they’re in a position of not being able to make the right choice, you have to support them in trying to find that right choice. My go-to now is definitely going, sending people to the rapid-access addiction medicine clinic. They sit down and literally ask the person, “What is it you want? Do you want to use safely? Do you want to reduce your use? Do you want to go cold turkey? What is it that we can help you and support you in doing?” And they make a plan. They have a contract, and they work through it. Yes, there is a lot of relapse, and there is going back and forth, but it’s an open dialogue where a person is just accountable to themselves: this is what I decided to do and this is what I want to do and these people are here to support me in getting that done. Rather than locking them up and throwing them in an addiction clinic and just closing the door and saying, you know, you’re going to suffer through this. Not only have they been punished for whatever troubles they had to be on opiates in the first place, but then they’re being punished to get them off of it. I just don’t think that we need to continue to punish people for something like this. I think that we need to be in a position of helping them. Getting to the root causes of why they’re using substances in the first place. Narrator: Problematic opioid use is devastating Canadian lives. The numbers are tragic and staggering. These are the stories behind the numbers. This crisis has a face. It is the face of a friend; a co-worker; a family member. Meeting those eyes, and seeing our own reflection is the first step toward ending the stigma that often prevents people who use drugs from receiving help. To learn more about the opioid crisis, visit Canada.ca/Opioids. This audio series is a production of Health Canada. The opinions expressed and language used by individuals on this program are those of the individuals and not those of Health Canada. Health Canada has not validated the accuracy of any statements made by the individuals on this program. Reproduction of this material, in whole or in part, for non-commercial purposes is permitted under the standard Terms of Use for Government of Canada digital content.
Darryl’s Story Darryl’s Story

Darryl’s Story

The question is, how does a doctor and somebody who’s so well educated get an addiction to fentanyl? This is where Darryl’s story begins…

Darryl’s Story

Darryl’s Story

The question is, how does a doctor and somebody who’s so well educated get an addiction to fentanyl? This is where Darryl’s story begins…

Darryl: The question is, how does a doctor and somebody who’s so well educated get addicted to fentanyl? This is how it happens. I’m already addicted to Percocet, I’m going through withdrawal, and I wanna just simply feel better. Narrator: In Plain Sight is a Health Canada audio series that explores the personal stories of people affected by the opioid crisis. Every day, approximately 11 people die from opioid overdoses in Canada. We see this on the news. We know that it’s happening. We know that it’s real. Yet, we tell ourselves that it couldn’t happen to the people we know, the people we work with, the people we love. That it couldn’t happen to us. The reality is, the opioid crisis is happening right before our eyes, in plain sight, and it can affect anyone. There are thousands of stories waiting to be heard. This is where Darryl’s story begins… Darryl: My name is Darryl Gebien, from Toronto. Born here, raised. Did, uh, 17 years of education and I eventually landed a job back in my home province, Ontario, in the emergency room. And that’s when things were going well. Getting my new career started. It had a very trying residency, but it was excellent and was very good training. Then came a day when I woke up. I’ve always had back pain, but this was substantially worse. I had had it since I was 18, off and on. I always knew something was wrong with my back but to this point it was completely. Except one day, things changed. So my mother had saw what I was going through with the pain, and she gave me one of her one her Dilaudids. She had back pain. And this is definitely a hereditary component. So that was my first introduction to an opioid, and, uh, I liked it immediately. I mean, it helped the pain, but I also liked the mood it gave me. Everything kinda felt good. So, immediately I was drawn to it because this one pill took away the pain, and psychologically, as well, I felt good. And, my mum recognized right away that something was up, cause I think I had asked for another one-two hours later and I remember her laughing, kind of. A nervous laughter. “Oh, I can see what’s going on here. No, no, no. You’re not gonna get any more of those.” That was the beginning for me. If Advil wouldn’t cut it, then an opioid would. The pain got a little bit better. It would come and go. I’d go many months without any problems. But then, progressively, that got worse. And, I started relying more and more on Percocet. So, I had prescriptions at this point from my family doctor. And I was taking Percocet periodically. The first prescription lasted a very long time. I remember that I had that pill bottle in my medicine cabinet for about a year. But, I found that the worrisome thing is that there was nothing really serious going on in my life. Life was going well. But I do remember, at one point, that part of me that I guess is somewhat risk-taking and trying new activities or pop a pill when his friends are over playing PlayStation Golf, um, because we’re having a few beers. And I’m like, “uh, I wouldn’t mind trying to see how the Percocet feels, like, when I’m having a couple of beers”. That was a decision that was just a horrible one in the end, because I opened a Pandora’s Box. But, that’s in my nature. Why’d I do that? But I did. And I didn’t realize the consequences would lead to a horrible spiral that almost led to my death from a fentanyl addiction, years later. So, that was the beginning of my downfall. It wasn’t like I was doing it every weekend. But just here and there, I would be going out with friends and I’d pop a pill. So I wasn’t taking it so much for back pain anymore. It was there. I would use it for the back pain but sometimes I’d take it just, socially. Does this mean I’m a bad person? Does this mean I have no morals? This is how it starts for a lot of people. I’m not alone. And I do carry a lot of shame, and, uh, embarrassment over that. But then, it’s something I’ve learned to recognize and control now. You know, I’ve learned the hard way to be careful with my decision-making. But going back, anyway, to that time, it was a slow and steady spiral that started and, it just progressively became a little more frequent and a little more than one pill, a little more often that I’d be drinking. Just to add fuel to this fire, things had changed in my life as well. I met a girl. She ended up moving from New Brunswick to Toronto, and this happened kinda quickly. She had a daughter. And my life changed very rapidly. Because things started not going so well. And then we had another child – we had my first child… her second child. And so, bought the house. And, um, and it changed now, from single life – living in a condo – to buying a home, working late, a job in the emergency department and the marriage was precipitous, the pregnancy was precipitous. This acceleration, I think, also undermined what was going on in my life, cause the marriage wasn’t going well, there was also lack of communication between my wife and myself, which is. — we’re both to blame. Also, there was a lot of discord between her and my mother. And it was a very, very difficult situation. And I eventually cut off my parents. Um… my wife and my mother got into some major, major email arguments, and I had to make a decision at one point, of what… what I was gonna do here. So I chose my wife. And that also led to more problems, cause now I’m cut off from my support network. We’re a very tight family. And, so the relationship’s getting worse, my back pain is getting worse, and isolation from my friends and family is starting. I’m internalizing my feelings. I’m not expressing myself to my wife or anybody else. And maybe it comes from my profession, but you know, as a tradition, you don’t share information about yourself, to remain professional. And I took it out on myself with the drugs. I felt that they helped take it away, the… it helps treat my anxiety. And the back paid. So the back pain’s getting worse. It’s progressively affecting me, not just pain-wise, but neurologically if affected my leg, I had weakness in my leg. It affected my bladder. I had problems with urination. And then, my wife and I decided to move from Toronto, because she’s unhappy in Toronto. I’m mobile with my job. I want to put some distance between my family and I, to be honest. Another bad decision. But we moved up to Barrie. And this was the icing on the cake here, because then within two years, my addiction just completely, uh, spiraled out of control. Narrator: Cut off from his family, separated from his friends, Darryl found himself both physically and emotionally isolated from what supports had previously buoyed him from completely going under. Increasingly he found no pleasure in the activities he once loved – except one – which grew to fill the emptiness inside of him – exacerbated by what he felt was a toxic work environment. Darryl: It just extinguished any sort of life within me. Everything going wrong here. The work. Be stressed and come home from work and be stressed at home with a constantly revolving argument with my wife. And now looking back, I mean, it’s obvious there were some serious issues. I’d forgotten about this until later on, but I remember I would come home from the night shift, or any shift, and I would sleep in the driveway, in my car. And that is an obvious sign that something is definitely very wrong. I just… I didn’t want to go into the house, and face an argument and stresses of my relationship with my wife. One thing I just need to describe here, just rewind a little bit, is the Percocet addiction grew and grew and grew. And, I just need to let you know that, how insidious the addiction is. Anybody who’s been prescribed Percocet, if they’re using regularly over a week, and they suddenly stop it, they will feel the effects of withdrawal. It is so strong and potent and it’s insidious on how the addiction grows on you. So that person stops. The next day they’re going through withdrawal and they don’t even know it. Because they’ve never felt it before. But they fell very irritable. Discontented. Anxious. Nervous. Sweaty. Chills. Aches. Pains. And they don’t know what… You know, I was going through that one day. I didn’t know… I had no idea what it was. It wasn’t after a week for me. This… we’re talking after several months. So a couple of years now actually. It was a day, I wanted to stop. And, the next day, within 24 hours, I was in a horrible shape with this withdrawal. And I didn’t know what it was at first. I didn’t recognize it. I just… people compare it to a flu, but it, it’s so much worse than a flu. Because flus don’t affect your psychology. Um, maybe you feel down. But, I mean, going through withdrawal… physical stuff’s like the flu. But what’s much worse, is the psychological. What’s going on in your head. You feel like you’re going to die. You feel like the world is going to collapse around you. And THAT, is incredibly powerful. Because, no one wants to feel sick. And how do you avoid from feeling sick? You take more. And, I don’t think I realized at the time, but I took another Percocet later on – and, low and behold, aha – I feel, felt back to normal. So that was a pivotal moment in my addiction, because now I’m totally hooked on it. Dependant. I’ll feel sick, and psychologically, in very rough shape, if I don’t take it. And so now, I’m a slave to the drug. And that was a big step – realizing that I’m going through withdrawal. Within six months, my use of Percocet – I’ve already given you the background – just completely escalated, and took off. And there was a day when I had no more Percocet, but I had a fentanyl patch at home. It had been there for a year. I did wear them occasionally, because, when I had exacerbations of the back pain. But this day was different. When I was going through opioid withdrawal, and I became desperate, and I wanted to simply feel better. And, this is a very common thing for addiction in general, is people go to extreme lengths to feel better. And, they will rob. They will steal from their family. They will burn bridges. They will rob banks. They will steal from pharmacies. Sell their bodies. And doctors will abuse their right to prescribe opioids. I totally took advantage of my ability to write prescriptions. I’m going through the Percocet withdrawal, and… I had the fentanyl patch, and this is where that recklessness in me, with that whatever it is in my personality, but I Googled on how to smoke it. I’d heard people were smoking fentanyl patches. I didn’t want to wear it, because it wasn’t strong enough. I was already deeply addicted. My tolerance to the opioids had grown. So wearing the patch didn’t have that effect of medicating my pain and my soreness. So I Googled how to smoke it, and, um, I was alone in the house. And I cut it up into little squares, and, I had a puff. And, it was incredibly strong. And I would have died, right there and then. I would have overdosed, had I not had the tolerance I had built up with the Percocet. It was an incredibly strong high. Powerful high. And I loved it. Immediately. And so it was like the first time I had the Perc… or the Dilaudid, many years previously. It’s a very similar thing. I’d just been introduced to something new, and it just hard-wired my brain at that point. I like this, I want more. The downside of this is now this drug is potent. This drug is, you know, a hundred times more powerful than Percocet, if not more. And not only is it more potent but you go into withdrawal even faster because it’s such a rapid-acting drug, fentanyl. So it gets you higher. And it gets you higher faster, but you also come down faster. So within 15 minutes, I was already craving it and taking more. It was that fast. The addiction just spiraled, accelerated now. That spiral just sped up a thousandfold. And so now, the next day, I couldn’t stop. It was six months of hell. It only took me six months to spiral to the point where I almost died. Something had to give. Either I was going to die because – not from an overdose – but just from, just from extreme use. I’d lost so much weight. And I’m hiding it. And trying to keep it all together. And I’m still able to work. I was not getting high at work. I would get around that. I would get around going through withdrawal, by wearing a fentanyl patch. And, I was dying. And, my mother knew it. My friends knew it. And I wouldn’t get help for myself. And then a couple of times, I tried to quit. I’d come home to my parents’ place. And live – I’d stay on the couch for five days and just was in horrible, horrible shape. And try to wean myself off. And I thought, you know, a week would be enough. I’d get time off work and try to wean myself off within a week. And that was not even close. In the end, it took me six months to get off the stuff. Six months, not a week. So, eventually I gave myself up. The pharmacy figured it out. The police got involved. I got arrested. My work was notified. Taken off the schedule. And I went to rehab for five, six weeks. And, um, went through absolute hell, uh, when I was there. I was incredibly sick. They don’t do this anymore, but I was put on Suboxone, and put on a rapid wean. Most people don’t tolerate it well. They start using again. But I guess for doctors who have, like me, who are very stubborn, I need to learn things the hard way. And I’m glad that they did it, buy, my gosh, I went through withdrawal, not once, but three times while I was there. And it was the biggest nightmare, worst nightmare of my life, by far. And I was incredibly, uh, weak at that point, but it took about 36 hours of the worst of the symptoms to get over, and then it was another six months to get through the physical stuff. And then it took another two years to get over the psychological effects. Couldn’t make up my mind on things. Very difficulty with concentration. Obviously I wasn’t working but it just took me a very, very long time to get through it all. I did have a couple of relapses. The police were investigating me. The last relapse, was soon after rehab when I should not have been discharged. To be honest, I wasn’t ready, I was still very sick. But, I had a court date and I was released and I wanted to leave rehab. So I relapsed. That’s when I, uh, what I’d call it a dry shower incident. So I relapsed on the fentanyl – smoking it in a shower stall in the basement. I smoked down there, because the smell wouldn’t trickle into the house. But I didn’t realize that I had overdone it and my wife saved my life. She came downstairs because I disappeared. And to this day, I still think it was nighttime, but she tells me it was morning. And she came down to find me green-faced, barely breathing. And that’s one shade away from blue. Which is cyanosis – which means “sayonara.” So she found me, just teetering on death’s doorstep. And I remember the look in her face when she, yelled my name and I guess I opened my eyes and the look of fear in her eyes, I will never forget. I put her through hell. Narrator: Darryl’s life was saved that day… But what next? Would this moment lead him down the road to recovery? Darryl: I will never forget the look on her face, but I can see… what I’d done to her and what I’d done to myself. And uh, you’d think that a person would be done then. Guess what? No. I kept going. I kept using. She took away the paraphernalia that was strewn around me in the shower stall. And I went right back to using again. And I didn’t care. I didn’t care about anything at that point. The bottom that finally got me was being arrested. Two weeks later, the police were investigating me and that last prescription for fentanyl triggered a response by the police saying “we gotta arrest this guy now. He’s a danger to himself and the public.” So they arrested me. Police came, seven o’clock in the morning, and raided my house. I was handcuffed and taken away. That day I was arrested. Put in the Penetanguishene jail, stayed there for about 18 days. And here I am, in an orange, prison jumpsuit, and three months previously, I was working as a successful physician in an emergency department. So that was very much a rude awakening. By this point, believe it or not, that was the beginning of my healing. Being arrested and taken away from my wife and children, that was finally the bottom. The rock bottom, at that point. So, I got better after that. I healed, when I was in jail for those 18 days. It was very sobering, scary experience, but I did okay in the end. Parents were there all the time visiting. When I finally made bail, I had to split from my wife. And so, she lived in the house with the kids. And I moved down to my parents’ place in Toronto. And, after that, went to a couple more rehabs, and finally got it right. In total, I did six months of rehab, and finally got better. Clear-headed and healed. With relapse, generally there’s a sequence of events that goes on of decisions. And I realized, if I do good, I feel good about what’s going on in my life and good things tend to happen. If I do bad, if I relapse nothing but sheer negativity is going to happen. And it took a couple of relapses to realize that. If I just think about my decision-making before I become impulsive. And that’s another feature of my personality, is impulsivity. To recognize it, and control it. And I carry that with me to this day. I’ve made a series of good decisions now. And I’ve built up a massive amount of recovery – of good, healthy recovery – because I’m taking better care of myself. I’ve learned to voice. To not internalize. To externalize. Share my issues with people. I’ve went to hundreds and hundreds of 12-step meetings. I went to after-care groups. I went to an addictionist and a caduceus group, which is people in recovery who are health care professionals. So that’s called “Caduceus.” And built up a strong support network. And, I had to live the next two years though, uncertainty about my future. I mean, the Crown attorney was talking to me about a 12-year sentence. Twelve years. Living like this, every day, not knowing. And then having the back pain, of course. It’s still there. It’s still going on. Major stressors. But I learned to talk about it. I learned all these things about how – I became a master of coping with my stress without medicating myself. That’s – that was the difference of what happened as the new Darryl versus the old Darryl. And that, surprisingly helped in many, many ways. I learned that the same things that helped in recovery, are the same things that lead to happiness. That’s a big one right there, as well. Things like being connected with other people. That’s huge. Being honest. Not being… not internalizing – like I say I keep using that word, but being able to express what’s going on. And so, something came to life in me, and my mother called it. She was… she was impatient, wondering when it’s gonna happen but it did happen. And then it grew, and grew and grew. And I remember, speaking to a guy in recovery and saying, “I’m finally back to the guy I was five years ago.” And he goes, “no, no Darryl… you’re better than who you were five years ago.” Wow. That’s true. And I’ve grown stronger and stronger since. It just took one hell of a lesson to get there. So, I’m living my life like this two years, not knowing what my future’s gonna bring. Eventually, I did plead guilty. Just for the record, it was trafficking fentanyl. But not trafficking just to make money kind of trafficking. Not dealing. Lot of people – and I thought this once too – that trafficking equates to dealing. No. Trafficking equates sometimes to dealing but the movement of drugs, giving of drugs, if you share a joint with somebody at a party, that’s trafficking. By me writing prescriptions for fentanyl, and, uh, having somebody involved when they gave it back to me, forcing a pharmacist to give a bogus prescription to me, that’s trafficking. So, I pleaded guilty, and I was sentenced to two years, plus a day. So that put me into the federal system. I was scared silly, of course, to be – to sit there and have my future in the hands of a judge. But fortunately, I got a very favourable sentence and it did come with a sense of total relief. At least now I know what’s going on in my future. Cause living like that with two years of uncertainty, is definitely a horrible way to live. So, I was cuffed and taken away. Not a good time. To see what I did to my family and friends and being in the courtroom and to see the tears and, but I was okay. So I went into the federal system and I served eight months and good behaviour. I was at Joyceville, Joyceville Medium. Which is an assessment, now called assessment unit, for two months and then for six months I was minimum security at Joyceveille as well. And, I did okay. It was a little difficulty when I first got out in December of 2017, just to readjust to normal life. To this day, loud noises and any sort of violence really bothers me. So it’s kind of – it’s a couple of scars left over I guess. But um, that’s the weird thing, I didn’t really witness much violence when I was in jail, prison, but I cannot watch a single thing on televisions – anything that has to do with violence. But I did okay in the end. I did a lot of writing when I was in there. I became a math tutor. I was a librarian assistant. I became physically active. And got healthier again. So, here I am, six months later and I’ve never been stronger in my life. What I want to do now, what I am doing, is speaking out about the opioid crisis. Speaking out about opioid addiction, substance abuse in general. And I’m willing to talk about my story in any sort of public forum, public speaking, education seminars, students, police. It’s important to me to tell – get out there and public speaking, any forum whatsoever, to explain this stuff to people. Like, why is it people will break into pharmacies and prostitute? Well I want to give the answers to try to humanize it, explain why people are doing this. And, I now see the patterns, which I never would have seen before when I was a physician and passing judgment on addicts. Giving them second-class treatment, which is endemic as well across emergency rooms in North America. That needs to change as well. There’s no room for judgment in the workplace, especially in healthcare. No room for judgment. We need to start looking at people, uh, people who are identifying as substance users, whether they’re on chronic opioids or full-fledged addiction, we need to look at them as somebody who – look past the manipulation, to realize, why are they trying to manipulate – because this is a sick person. And I want to let the doctors and nurses understand and try to treat people with compassion, and to be humane as opposed to judgmental. Narrator: Problematic opioid use is devastating Canadian lives. The numbers are tragic and staggering. These are the stories behind the numbers. This crisis has a face. It is the face of a friend; a co-worker; a family member. Meeting those eyes, and seeing our own reflection is the first step toward ending the stigma that often prevents people who use drugs from receiving help. To learn more about the opioid crisis, visit Canada.ca/Opioids. This audio series is a production of Health Canada. The opinions expressed by individuals on this program are those of the individuals and not those of Health Canada. Health Canada has not validated the accuracy of any statements made by the individuals on this program. Reproduction of this material, in whole or in part, for non-commercial purposes is permitted under the standard Terms of Use for Government of Canada digital content.
Charlotte’s Story Charlotte’s Story

Charlotte’s Story

We know that it’s real. Yet, we tell ourselves that it couldn’t happen to the people we know, the people we work with, the people we love. This is where Charlotte’s story begins…

Charlotte’s Story

Charlotte’s Story

We know that it’s real. Yet, we tell ourselves that it couldn’t happen to the people we know, the people we work with, the people we love. This is where Charlotte’s story begins…

Produced by Canada.ca/Opioids
Narrator:

In Plain Sight is a Health Canada audio series that explores the personal stories of people affected by the opioid crisis.

Every day, approximately 11 people die from opioid overdoses in Canada.

We see this on the news. We know that it’s happening. We know that it’s real. Yet, we tell ourselves that it couldn’t happen to the people we know, the people we work with, the people we love. That it couldn’t happen to us.

The reality is, the opioid crisis is happening right before our eyes, in plain sight, and it can affect anyone. There are thousands of stories waiting to be heard.

This is where Charlotte’s story begins…

Charlotte:

Hi my name is Charlotte Smith. I guess my problems really started when I was about uh – I was almost 13 and my biological mother came to England, because she is British but she had moved to Canada and had gotten married, and uh, she but had never been in my life. I was adopted out when I was six months old.

When I was about 13 she wanted to find me and re-adopt me and take me back into her custody so she did. And she paid for my immigration to Canada. Sponsored me in. And, it was a pretty devastating transition for me. I was very homesick. I was ok for almost year and we were in our honeymoon phase, but after that, everything went downhill.

I started cutting my arm and avoiding my biological mother. I stayed out a lot with friends. I didn’t want to go home. I didn’t feel like I was wanted there.

I had found some recordings that my mother had done of her self-therapy and she was just sobbing into the recording saying how I wasn’t really like her daughter, and how I didn’t speak like her and I didn’t have the same values as her and she was clearly devastated by that.

As my mental health declined, her behaviour towards me also declined. She became very emotionally abusive.

Eventually, she dropped me off outside of a foster home where I had babysat. This was a few weeks before Christmas, when I was 15. I cried for about three days straight. After about a week of being in this foster home, where I wasn’t a ward of CAS (The Children’s Aid Society), but my mother was paying rent to the parents to keep me there, which had been cleared by CAS.

I was so scared of being alone, you know. I didn’t have any family in Canada besides my biological mother and I thought if things don’t work out at this foster home, I’m just going to be completely alone in a country where I really don’t feel I belong.

So their marriage dissolved. The foster home was completely destroyed by that. I ended up living on my own on and off with that man and in and out of horse farms that I had also volunteered at when I was 13 and 14, since coming to Canada.

So horses, and that experience, really provided great opportunity for me for housing – because I had the experience mucking stalls – when I came back to these places I was a 16-year-old homeless girl. They would take me in and let me work there for a room. But I also started using a lot of ecstasy. I had never done any drugs before being kicked out of my house.

But after that, everything just seemed even more hopeless than it was before. It was just a way to cope. It was a way to cope with being homesick from England, and then it was a way to cope with the loss of my newly found biological mother.

Narrator:

So at just 18 years old, Charlotte left Canada and returned to England – with no life skills or experience living on her own.

But the ties she had to Canada began to tighten and she soon found herself leaving England to return to the only life she really knew.

Charlotte:

Then things went further downhill because I had failed at going back to my home. I had come back to Canada and now the farms were out of reach for me.

So I just started doing more drugs. I met some people who were prescribed OxyContin and I started to take that. And, at first I thought this was great, because it allowed me greater strength capacity. I got a job in construction, and I was able to keep up with the men. I was able to lift the drywall sheets – everything – and keep that energy going all day because of these pills. I didn’t realize that I was addicted to them.

They also gave me a lot confidence and I moved in with a woman who was addicted to OxyContin, and her son. And I taught her how to crush them up and snort them because that’s what I had always done with ecstasy. I didn’t realize that that would make her addiction – which I still, I didn’t realize that even she was addicted, but it took her addiction to prescription pills to the next level because she started going through them so fast because the high is more intense but it’s shorter. And of course you build up resistance too. So, then we started having to go through all of her pills and finding ways to buy more. And when I didn’t have them, I would be very sick and the whole world would be gray. Like, apart from the physical sickness.

And the woman I was living with ended up going to detox because of that. And I felt very responsible. She ended up losing her child as well, for a period. But when she came out of detox, she came out with a boyfriend who used crack cocaine and I then fell into smoking crack with her and her boyfriend. And it was fairly easy because it wasn’t my first time seeing crack.

I used to use online dating sites to secure drives places to pick up these ecstasy pills. So I would tell guys that I was going to sleep with them if they would give me a drive so that I could go get my pills. And one time, the gentleman who was driving me around had offered me crack and I spent, I think 4 or 5 days in his apartment, just high out of my mind. Just not fun, paranoid, scared but lighting that pipe and taking the next hit, and the next hit and the next hit. Even though I was shaking and sweating and sketched out.

And I got out of that apartment and I thought, “wow.” And it took me a few days to recover. I thought, “I’m never going to ever do that again and I hope I never see it again,” and I didn’t think I would. But by the time when I saw crack again, when I was 19 now, things had gone so far downhill I really felt like that I had left nothing to lose. I had no family. I had no real future prospects. I had dropped out of high school. There was no hope of returning to my family in England.

I felt like I was a complete failure. So I smoked the crack for the next three years every day. The only times when I didn’t was if I was in jail or when I was working to try to get more drugs – which was through shoplifting or sex work. And of course during this time I also kept doing OxyContin but I also started injecting OxyContin and morphine and cocaine as well, which was a very terrifying experience actually.

Even though I did it, it’s not that it didn’t scare me. I would go into these houses where I would see people searching for veins for hours – just poking needles into their arms, just trying to find that hit. And having abscesses, and having seizures, and just using dirty needles, sharing needles, and as shocking as that was, I honestly just felt as if I was finished – that my life was never gonna be what it could been if perhaps, I hadn’t come to Canada or if my mother hadn’t kicked me out.

So I followed suit, and I and I used dirty needles, and I shared them and I did all of those things. And, uh, really the only reason that I got out of drug use was through pure luck. And that’s what’s so frustrating about the system as it is right now, is that there is no standardized state-sponsored help for people to get out of addiction or homelessness. There is no reliable solution.

Everybody, sort of, is left to find their own way, which I was lucky enough to do. Because one of the last times that I went to jail, I knew that if I got out of jail and I went back, picked up the pipe or the needle, that I was going to end up with AIDS or HIV. A lot of my friends at the time had one of those diseases or the other.

So I called a friend, and he agreed that when I got out of jail, that I could move in with him. So, I went out there and I didn’t come back into the city at all for probably almost a year. And in that time, somebody helped me get a job at a horse farm. And every day that I walked into that farm, I saw the horses and I knew that if I were to pick up a pipe, if I were to go in to Ottawa and to go downtown, I would lose everything. All the trust that I built up with these people and all the privileges I was given to take care of these animals. So I was able to stay clean.

Then I did a year of college. Which now I’m starting my masters in September. I’ve got – had many opportunities to conduct research on populations that I used to be part of – like sex workers, drug addicts and homeless youth.

So, finally I can sort of see a future for myself. And it’s a future where I believe that I’ll, hopefully, be able to help some of those people that I’ve left behind. Cause I definitely do have survivors guilt, PTSD from, uh, the experiences of being homeless and being addicted to hard drugs. So that’s something that I still struggle with. I have a lot of nightmares, where somebody will be overdosing and I can’t save them. And those happen all the time, and that’s something I have to continue to try to put behind me.

I also still struggle with active addiction. So, I’ve been sort of somewhat on the straight and narrow for 5 years. Addiction is very powerful and I seem to not be able to escape it – and I wish that something could take it from my mind. But so far I haven’t found a way to do that. And there are so many memories that I have of using in Ottawa – that wherever I go, it’s just constantly in my face.

And I know that addiction and drug use is invisible to a lot of people that have not experienced it. But when you have experienced it, it’s unavoidable. And wherever you go there’s reminders of it and there are triggers that cause you to have urges to use and they can be very hard to deal with and there’s not necessarily a lot of help for that beyond, you know, weekly meetings with counsellors or group sessions with other former users like, NA (Narcotics Anonymous).

But really it’s something that’s always there inside you. And even I’ve watched my friends die and people are dying every day in Ottawa from opioid use. And as painful as that is for me to see those people dying, it’s still not enough of a deterrent for me to not use when… when that urge strikes me. And that makes me feel disgusted at myself. And I don’t know what the solution is.

Narrator:

Fifteen minutes. That’s all it took for Charlotte to take us on a life journey.

She then shared reflections on her life, how the world came to treat and perceive her – how she began to see herself differently too.

Charlotte:

One thing I noticed when I was using crack and heroin and OxyContin and morphine on the streets, was that you are no longer treated like a young girl. You become seen as responsible for yourself, as an adult who is making – conscious of their decisions – and just simply choosing the wrong path. Which I very much felt like I was not an adult and that I still had the mentality of when I was 15.

So to be treated like an adult was difficult, because when you go, say to your social worker for a welfare cheque and they are very unsympathetic that you’ve been using or that you can’t find a place to live it’s very damaging. And… it’s awful because you so badly want people to see that you are a 19-year-old or 20-year-old girl, and that you need help.

But they tend to view you like just the way they see any other street user and that it’s your fault for the position that you’re in. And it’s very uncomfortable to ask for help because you don’t feel like you deserve it, because you start to think that, “I am the cause of my own demise here and I did do this to myself.” Which is to a point true, but there were also a lot of other complicated issues that played into me taking that choice to use drugs.

And I think that that barrier that comes up between you as a young drug user and the rest of society – it causes you to look for belonging in other ways outside of the mainstream. So you become very close to the older people on the street the older addicts who are around you and you forge some sort of community with them. But it’s certainly not a healthy community and that’s not because of the individuals themselves. They may be very nice people and they’ve also come from so many different backgrounds, but the lifestyle associated with drug use on the street is very toxic.

So I met people who were actively engaged in sex work and who were not honest about that when I first came on the scene. So they would set me up on dates with men who I honestly, naively, stupidly thought were, maybe wanted to date me. And they were not. They were paying the people I knew to have sex with me and I had just had no idea, and that’s what I mean by that I was a child even though people were treating me like I was an adult.

I was very naïve and people wouldn’t believe me when I said I didn’t know they were pimping me out. They would just think that oh you’re a slut. But no, I really didn’t know and I when I did realize, I tried to kill myself.

The girl that I was staying with, who was an IV drug user, she ended up being all I had. I felt safe with her and then when I realized that she was selling me to men and that she really didn’t care or that she did care about me, but her need for drugs was so powerful that she was willing to risk my life or my safety to get those drugs, I was devastated and I stabbed my arm multiple times with a carving knife and she had to call an ambulance. And because of that, she wouldn’t let me go back to her place. Because I was a heat bag then.

Because of me she had to call 9-1-1. Which is a serious offense in this subculture of drug use and homelessness and sex work because police are pretty awful to drug users, in my experience. And it’s very hard, even if you’re watching your friend overdose, you do not want to call 9-1-1, because you don’t want to get in trouble. You also don’t want to call 9-1-1 because you know that the person laying on the ground does not want to wake up and see the police in their face and be taken to jail because of their addiction. And that is a call I have had to make. And I tell you that I did leave my friend on the floor until her lips were blue before I called 9-1-1 because I was scared of the police.

And the time that I tried to kill myself when I was first realizing that I’m in this subculture, where people can only care up until they get their next hit.

When I was released from the hospital in Quebec, I was covered in blood. This is another example of how you’re not treated like a young girl – when they took me in, they were basically laughing at me. They weren’t taking it seriously that I had tried to kill myself and they told me that I just, you know, I was just in drugged-induced psychosis, basically and that I was jonesing and that I just needed another hit, and that’s why I was acting out.

They didn’t give me even any bus fare. They let me – they released me to a place where, you know, outside of the hospital where I had no idea where I was and I had to find my own way back to this girl’s house… not knowing that she would also reject me from there. But just the lack of compassion… I know to them, I was wasting their time because they had real people with, what is considered real health issues – that aren’t addiction – to deal with. But I really did need their help. And if an adult, I feel like would have treated me like I was a young girl who needed help, things could have been different. But they didn’t even try. And that all contributed to me just giving up more and more.

I was worthless. I, uh, walked all through the streets of Ottawa in those bloody clothes and nobody offered me any help. Except a bus driver let me on for free eventually. And the only places that I could go were crack houses… and I call them crack houses but these are houses where there is a lot of prescription drug use its not all crack. It’s all kind of drugs, a lot of opioid use, a lot of needles… and those are the people that ended up taking care of me and letting me sleep on their couches with their bed bugs until I was healed enough to get my stitches out and carry on about my business.

And by then there was no other options outside of sex work because – I was too awful looking to get away with shoplifting. So, when you go into shops when you’re looking clean and tidy, they don’t notice you and you can get away with a lot more than when you walk in in dirty clothes and scabs all over your face and arms. You get noticed very quickly. So sex work becomes one of the only options because men, and not all men, but a lot of men don’t seem to mind if you are dirty and if you have scabs and if you are sick.

Every other part of your identity beyond drugs and prostitute and homeless are erased and that’s what people see. They see an addict and they can justify many actions against you by that. They can justify throwing you in jail, or kicking you out or having sex with you when you clearly are in no shape to be doing that because you’re just an addict – and you’re no longer a young woman who was scared, who needs help, who was a new comer to Canada. You’re just seen as disposable.

I don’t think that people treat young girls who are not homeless addicts the way that they treat homeless young addicted girls and I wish that is something that could be changed. I know a lot of men that have done terrible things to me, have daughters at home that they would kill somebody for doing the same thing to. But because I made the choice to put a needle in my arm I lost all the privileges that many humans in Canada do get. The rights over their own body – to not be touched while they are sleeping.

And just because I made the choice to sell my body or because I made that choice – because it was the only choice that was left to me…doesn’t mean that I can’t be raped. Because I did get raped and there are a lot of other girls who are out there getting raped too. There’s just no respect for addicts.

Narrator:

As far as she has progressed in life, sobriety is still a source of shame for Charlotte and she is always aware what the world expects and what is realistically possible.

Charlotte:

People do tend to think that when you stop being an addict, you’re supposed to at least stop doing all drugs and I think that’s taught in a lot of these recovery practices. But for me, that’s not the case and I think it is a dangerous misconception.

Because if you tell me that I can’t smoke pot or drink alcohol for the rest of my life, I’m going to be very anxious and panicky just the thought of that to not have that kind of safety net of more socially acceptable drugs.

When I first got off the streets, marijuana really helped me stay away from going back to the hard stuff. It also helped me sleep at night. I find that I have less nightmares. I find that I have less reoccurring traumatic thoughts about my past when I’m smoking marijuana. And I’m ashamed of that pot use to a certain extent because… while it is legalized and there is a lot less social stigma around it, I think or I feel like in professional worlds, that it might delegitimize me in the field of research because I use it so often. I feel like people may think that I am not a serious professional or they might worry that I’m conducting research stoned. I don’t use it for the day to day activities. I use it as a crutch at night.

What I hope to do is transform the research process into one that can be actually part of prevention and intervention for youth homelessness and addiction. So by helping to facilitate positive, meaningful youth engagement with youth who are at risk of homelessness and addiction, or who are experiencing those things. And trying to send the message that when we’re in places of privilege, like I am now, like, each interaction that I have with a youth who is experiencing hard times, can be a positive one.

It can be more than just a simple interview where I’m siphoning knowledge from them about their experience, to publish towards my own career. I can try to offer them resources, I can try to offer them hope, and at the very least, I can ensure that I’m giving them cash dollars for their participation in my studies, rather than gift cards, which are not a form of harm reduction, the way that I see cash is.

Because if I’m giving cash to my participants, then and they need drugs, then it’s my line of thinking that they’ll have to do one less awful thing to get those drugs because they have that $20. And I think that there is a perception, that when you’re giving addicts money, you’re enabling them. I think you need to respect people’s wishes too. If somebody is asking you for money, it’s because they need money. And it’s not up to you what they do with that money. And I think that you can provide some semblance of safety by giving them that money, rather than a gift card – which will not help them get the drugs they need… in which will mean that they will still have to go walking down the streets trying to catch the eyes of drivers who will stop and ask them if they want a date.

I hope that in all the research that I do I can engage meaningfully with youth, I can get them excited about the possibility of returning to school or following dreams outside of school that are off of the streets and away from drugs.

And I think from the youth that I have worked with so far, they do appreciate that I come from a background similar to their own and they do seem to be more willing to talk to me about more intimate details of their experience because of that. And they’ve told me that. And they seem also to be excited that I’m doing so well, and I think it gives them a sense of hope that, well maybe, you know, the future doesn’t have to look homeless and addicted. Narrator:

Problematic opioid use is devastating Canadian lives. The numbers are tragic and staggering. These are the stories behind the numbers. This crisis has a face. It is the face of a friend; a co-worker; a family member. Meeting those eyes, and seeing our own reflection is the first step toward ending the stigma that often prevents people who use drugs from receiving help. To learn more about the opioid crisis, visit Canada.ca/Opioids.

This audio series is a production of Health Canada. The opinions expressed by individuals on this program are those of the individuals and not those of Health Canada. Health Canada has not validated the accuracy of any statements made by the individuals on this program. Reproduction of this material, in whole or in part, for non-commercial purposes is permitted under the standard Terms of Use for Government of Canada digital content.

Amy’s Story Amy’s Story

Amy’s Story

Josh had a great sense of humour and loved playing sports. He went to a party one night and everything changed. His sister, Amy, shares his story…

Amy’s Story

Amy’s Story

Josh had a great sense of humour and loved playing sports. He went to a party one night and everything changed. His sister, Amy, shares his story…

Produced by Health Canada: Canada.ca/opioids
Narrator:

In Plain Sight is a Health Canada audio series that explores the personal stories of people affected by the opioid crisis.

The most recent data shows that every day approximately 12 people die from opioid overdoses in Canada.

We see this on the news. We know that it’s happening. We know that it’s real. Yet, we tell ourselves that it couldn’t happen to the people we know, the people we work with, the people we love. That it couldn’t happen to us.

The reality is, the opioid crisis is happening right before our eyes, in plain sight, and it can affect anyone. There are thousands of stories waiting to be heard.

Josh had a great sense of humour and loved playing sports. He went to a party one night and everything changed. His sister, Amy, shares his story…

Amy:

We grew up in a small town in Nova Scotia. I’m one of four siblings. I’m the oldest. Josh is, the middle child. We had a very good childhood – very typical, middle class. We all were involved in different sports and had our own interests. I was in gymnastics and volleyball, Joshua loved hockey, skateboarding and snowboarding, played sports throughout school. We were all very close.

Josh always was a risk-taker. And he had a fabulous sense of humour. He was always the class clown and the person that could make people laugh. He also enjoyed volunteering at my grandmother’s daycare. He would spend summers there helping her out, and taking part in activities, with the other kids. He really enjoyed, connecting with younger people, too, as he got older. And kids loved him because he did have such a great sense of humour and was very playful and even into his twenties was always the kid at heart.

When he left school, he went out to Alberta. He was working out west as an arbourist. He loved doing that. That was something that, he felt a sense of accomplishment in… getting the training and getting promoted. And that’s kind of when our lives changed, forever.

At first it was great news. We had heard Josh had got a promotion in Nova Scotia to move back, home where all our family is and we were all thrilled. And he was pretty proud of himself, too, because he had the ability to hire some of his friends when he came back to Nova Scotia from Alberta. And he thought that was pretty cool. He was 21 and just a zest for life, starting out on this new adventure. Purchased a new car coming home, I can remember he was so proud of it, always shining it up. Looking for a new apartment. Just a lot of things to look forward to.

And on March 19th he’d been home maybe two months, maybe not even that long. I’m not quite sure, but it was still relatively new. He was staying with someone and getting all these things in place, like apartments, buying furniture, things like this.

It was a Friday night. He had finished work that day. He was supposed to, meet me at a cottage, a family cottage, which was about an hour away from where we lived. And he called and said, “I’m just so tired, Amy, I’m sorry. Work was really long today. I need to pick out this furniture to be sent to the new apartment and I’m just too wiped to drive out there. There’s always next time.” And those were actually the last words I ever heard from my brother, is “there’s always next time” which is so ironic, because unfortunately there wasn’t.

We had just a regular night at the cottage. I had no sense that anything was not the norm. I woke up that morning, packed up our stuff, headed back to our hometown. I took my daughter swimming. We were in the pool, having fun. Again, no sense that anything’s wrong. When I arrived home, I was getting her changed out of her bathing suit and my phone just was ringing incessantly. And I could start hearing notifications go off. And I was actually getting quite irritated — I’m trying to get a wet bathing suit off a toddler and I’m thinking, “what is so important?” like, you know, who is this?

So, I root through my swim bag, get out my phone, answer the call and it’s my younger sister. And just the tone in her voice, I knew something was… was terribly wrong. She asked me if I was alone. I said, well, I have Chloe with me, my daughter. And she said, “is anyone else there with you?” and I’m like, thinking why, why does that matter? And she said something happened. I said, “Just tell me, just tell me, Mallory.” And that’s when I found out.

She said, “Josh went to sleep last night, and he never woke up.” And just a wave of shock and… I can’t even explain. I’ve never had those emotions before in my life until that day. And not knowing what could cause something like this to happen. My brother was an extremely healthy, happy, 21-year-old man. I just couldn’t understand. How does he go to sleep and not wake up?

He had had spleen issues the year prior, so we immediately thought, well maybe his spleen ruptured in his sleep and nobody, you know, nobody was with him. We waited for the medical examiner a few days later to give us a call and that’s when we realized that Josh was perfectly healthy. His cause of death had nothing to do with anything physical. And that’s when she asked us if substances might have been involved.

We were kind of taken aback by this. We were expecting answers that day, not more questions and then she said we’d have to wait for a toxicology report. So that’s when my family started to call people who he was with that night, friends, trying to find out what he was up to, and if drugs could have been involved.

And then quickly we found out that he had attended a party with a group of friends. It was a birthday celebration. And the prescription painkiller hydromorphone was being experimented with and offered to people and he, he tried it and that ended up being the cause of death, we found out later in the toxicology. We had to wait a long time for those answers, but we found through friends and we pretty much knew, after speaking to people that that was very likely the cause. And it was absolutely shocking.

I had no idea that experimenting with a prescription painkiller, which is prescribed by a doctor could have such permanent, irreversible damage. I always thought that people who were harmed by substance use developed addictions, and there was this long period of time where they would struggle, and family could reach out and help them and get them into treatment.

I never dreamed that one night I’d be talking to my brother, everything’s happy, all is great in the world, and the next morning I wake up and he’s gone. Because of one, one pill. It definitely evoked feelings of helplessness because, looking back, I don’t really know what we could have done except, now — this happened in 2011 — so in 2011 there was no naloxone available without prescription. There was very little awareness about opioids. There was no Good Samaritan Law. So these are the types of things that I think could have impacted that situation that weren’t accessible to people and people weren’t aware of seven years ago.

Narrator:

Devastated by her brother’s tragic and unexpected death, Amy found herself stepping into an advocacy role in the hopes of broadening awareness of how the opioid crisis could affect any one of us.

Amy:

It was nine days after Joshua passed when I started my advocacy. I didn’t really plan on starting advocacy, I just knew that if this could happen to my family and my brother and I had no anticipation that this was even a possibility, that there was a lot of other people in the world in the same position and they needed to be made aware. And we needed to act on this issue. Because my family was not aware until my brother passed away and all I want to do is prevent other people from learning about the crisis in that way — through prevention, education. There’s lots of things we can be doing to prevent these tragedies, because they are preventable deaths.

There is no magic bullet, but first of all we need to reduce demand. We need to save the lives of those who are currently at risk and using, through safe consumption sites, accessible naloxone, accessible medication-assisted treatment. We need to treat the people that are currently using and save their lives, and while doing that we can be preventing unnecessary exposure to opioids through more cautious prescribing, education, awareness. We need to be working on both sides of the crisis to make a meaningful impact and save as many lives as possible.

Because, I don’t know how many times I’ve heard the narrative of as well – I know illicit fentanyl is ravaging our country right now. But I don’t know how many stories I’ve heard where people were first exposed to opioids through prescription, thinking they’re safer, they’re cleaner — which they are, in a sense, they’re definitely safer than illicit fentanyl — but, a lot of people are initially exposed in that way and then once they develop tolerance or a substance use disorder, it can often then lead to seeking stronger alternatives, cheaper alternatives, if prescription pharmaceuticals aren’t readily available or, or not strong enough.

So, we need to be working on both sides. We can’t arrest our way out of this issue, too. I think decriminalization of personal use would be very helpful. It would help people engage in treatment. Because when you criminalize people who use drugs, then they do it… they hide it. They do it in silence.

Because lots of people, even like my brother, maybe if he lived that night and continued using opioids and developed a substance use disorder and needed to seek help, when you criminalize drug use, you know with his job, with his everything else, that you have so much to lose because you’re admitting to breaking the law by saying that you use drugs. So, I think it would be very helpful for people, if they could seek out help without the fear of being criminalized. Those are some things I think that would be very useful.

The criminalization too is so related to stigma. I never experienced stigma in my life until my brother passed away from a drug-related death. I never knew what that felt like, but I quickly learned.

When I began my advocacy and started to speak out publicly, I had to learn very quickly not to read the comment section because the hatred towards people who use drugs, in society, and the misunderstanding that these people are “less-than” is very hurtful and it’s very prevalent. I think that’s one of our biggest barriers to implementing some of these interventions, is the idea that substance use is a moral issue, not a health issue. And until we can change society’s thinking in that regard it’s going to be very hard to implement some of these interventions or get support, get political will, get public support for these interventions. And I think that that’s also what’s allowed this crisis to perpetuate.

Seven years ago, when my brother passed away –most, opioid-related deaths were prescription-related. And those numbers were still very high, like hundreds of people in Alberta dying per year. Numbers have stayed constant in Nova Scotia. Even in Ontario, hundreds of people a year dying from opioid-related deaths as far back as seven years ago. And, but nobody knew it was really going on and nobody really seemed to care. And I think that had a lot to do with stigma. These are people that, you know, are doing it to themselves. This is not really an issue that helps people in politics or, you know, people that have special interests to pursue. But now that we created such a large opioid-dependent population, organized crime has entered and they’re willing to feed that with illicit fentanyl which is just devastating.

It really didn’t need to get to this point, but the stigma around the issue allowed it to kind of, grow in silence and it perpetuated it without people being even aware that this was happening until it got to such, large, devastating proportions.

I think it’s helpful for people to share their stories and bring a face to the issue. And sadly, I always say this is a club you don’t want to join, but so many people have, unfortunately. And, I see much more awareness now of people sharing their stories than seven years ago when my brother passed. And I do think that that is very helpful to actually see the faces of the people, hear from the families that are being affected, the family voice and, even the people that are currently using, people who use drugs, they have a voice. And their voices matter. So, people with lived experience have an important part, to play in this issue and they need a seat at the table. In hearing our voices, in seeing our faces, will hopefully reduce stigma.

Narrator:

Problematic opioid use is devastating Canadian lives. The numbers are tragic and staggering. These are the stories behind the numbers. This crisis has a face. It is the face of a friend; a co-worker; a family member. Meeting those eyes, and seeing our own reflection is the first step toward ending the stigma that often prevents people who use drugs from receiving help. To learn more about the opioid crisis, visit Canada.ca/Opioids.

This audio series is a production of Health Canada. The opinions expressed and language used by individuals on this program are those of the individuals and not those of Health Canada. Health Canada has not validated the accuracy of any statements made by the individuals on this program. Reproduction of this material, in whole or in part, for non-commercial purposes is permitted under the standard Terms of Use for Government of Canada digital content.
Stigma stops people from getting help Stigma stops people from getting help

Stigma stops people from getting help

For Lori – a doctor – substance use-related stigma prevents her patients from seeking treatment and delays their recovery.

Stigma stops people from getting help

For Lori – a doctor – substance use-related stigma prevents her patients from seeking treatment and delays their recovery.

Produced by the City of Hamilton
Dr. Lori Regenstreif – Addiction Medicine Specialist, Dept. of Family Medicine, McMaster University

My name is Lori Regenstreif, I live and work in Hamilton and I’m a doctor and an addiction medical specialist.

To come out and say that I have this story of this one time where I witnessed stigma experienced by one of my patients or I saw it happening myself is really challenging because for most of my patients it’s normal to experience stigma.

Where is the stigma coming from? Some of the drivers I think are really systemic structural and historical. I think it also comes from fear. People are afraid that, that’s a human just like me, could I be like that or I have a relative who has that problem, could they end up like that, that person is scary. The other thing is fear of the person when most of the time people are harmless.

There are people out there with severe alcohol or opioid abuse disorders who are working, who have families, they have children, they come home, they drive, they do all of those things, they pay their bills most of the time, they may have money problems, but they keep it under wraps, for whatever reasons they’ve got some protective factors that keep them from being visible. There’s a huge huge population in our society like that. They come to me eventually but it takes them awhile because of the stigma and because they don’t identify with the people in the street that we see. Meanwhile on the other end of the spectrum are people who have come to total desperation, they’ve lost everything, they may have not had everything in the first place and now they’ve lost whatever they did have, in terms of money, relationships, social supports, housing and of course we’re going to see them.

Substance use related stigma affects my clients in their ordinary lives and in their recovery because I absolutely believe that it sets them back and prevents them from being able to recover because it adds barriers to their attempts to get better… People will avoid coming to the hospital or doctor when they’re very very sick or they’ll avoid coming to see a nurse or somebody because they are ashamed of what they’ve done and they’re afraid of being told, “well you shouldn’t be doing that, why don’t you stop doing that?” and that’s classically people don’t understand, they don’t have any education perhaps or they don’t have training with working with substance use disorder… so their approach is very hurtful.

We have to educate ourselves, we have to educate each other, our children, our co-workers, our learners if we’re in a teaching position because it’s really the people around us and the people we look after that’s our society and if we can do all that I think we can really start to feel a shift.

The words you use could save a life The words you use could save a life

The words you use could save a life

Gord Garner, Chelsey June, and Jaaji of Twin Flames chat about using positive language when discussing recovery from addiction.

The words you use could save a life

Gord Garner, Chelsey June, and Jaaji of Twin Flames chat about using positive language when discussing recovery from addiction.

Gordon Garner:

My name is Gordon Garner. I’m here living in Ottawa and I’m living in recovery from substance use disorder. I’m the Chair of Recovery Day Ottawa, and I’m a Certified Addictions Counselor.

Chelsey June:

I’m Chelsey June. I’m part of the musical duo Twin Flames. I live here in Ottawa and I’ve been in recovery for 12 years.

Jaaji:

Hi, my name is Jaaji. I’m from Twin Flames, we’re a music group from Ottawa. And I’ve been in recovery for about three years now.

Gordon Garner:

Words matter because we begin to describe ourselves and people describe us by our behaviors, which are a result of our condition, but aren’t reflective of who we are. We’re actually the people who don’t approve of our own behaviors, but when we get merged in our behaviors, there’s no way out of that is what I am, then that is what I am. So where’s the exit then? If I’m a person who’s suffering from these behaviors, then I remain a person and I have an exit into that person. So I think it’s critical that we change the language.

Chelsey June:

So when I first started talking about my recovery and felt comfortable enough to open up about it, I used to say that I’ve been clean for however amount of years that had been at the time. But when I met Gord, he used the term recovery. And I never once heard him use the term clean. And when I described myself that way, he spoke a little bit about the word recovery and how much more of a gentle approach that is, because saying that you’re clean, it’s almost like saying that you were dirty at one point or you were doing something wrong. And I think a part of recovery, and a part of accepting those choices that we’ve made in the past, are being able to make peace with it and then be proud of who we are today in this moment.

Jaaji:

Well, I think that when you’re hearing the terms like abuse and being clean and using those common terms that are being used today, it just takes away from the actual problem.

Gordon Garner:

Everybody has this language and they want to get their own experience and I try to be very respectful for how people describe their experience. But at the same time, I want to recognize that the research shows that changing the language will change the outcomes for people. So we don’t want to stigmatize people in recovery because of the words they’re using for their experience. But we want to look at those words and see if they’re still being effective. And both Chelsey and Jaaji, they’re singer-songwriters. They believe in words. And so different words, different outcomes, different meanings. So I think it’s a beautiful thing.

Gordon Garner:

And when I saw one of their performances for children last week at the NAC and the kids were in love with them, and I had to be careful not to push them aside so I could go dancing. And having the opportunity and seeing the work they’re doing in the communities that they’re doing, the voices and languages that I don’t have, and imagery that I don’t have, and skills that I don’t have, really gives me great hope for the future and to know that a small part of that is the joy. I used to darken doorways, was always my experience for many years. So not to darken doorways, but to bring light to places. It’s a beautiful life.

And I think the key I want to say is the language I used on myself to describe my behaviors, as if they were me, didn’t allow me to have the life I have today, until I could imagine being something other than my behaviors. I couldn’t be. So I think imagination is critical. And these folks are working full-time on raising imagination of children to be together and to be joyful and to have good lives. It’s beautiful. (singing)

We must be careful judging anybody in a different walk of life We must be careful judging anybody in a different walk of life

We must be careful judging anybody in a different walk of life

At least one in five British Columbians will experience a mental health problem at some point in their lives. Still, many of the people affected don’t reach out for help. But, as Travis Lulay from the BC Lions says, opening up is the bravest thing you can do.

We must be careful judging anybody in a different walk of life

At least one in five British Columbians will experience a mental health problem at some point in their lives. Still, many of the people affected don’t reach out for help. But, as Travis Lulay from the BC Lions says, opening up is the bravest thing you can do.

Produced by the Government of BC
Travis Lulay:

We’ve had family members who have dealt with substance use issues over time, and I’ve personally had several teammates. The more aware you are of it, I think the more you’ll start to see that, this is something that in a round-about way affects all of us.

In my own personal experience, I can empathize because I know these people’s backgrounds and I know that wasn’t the intention, it was something that happened to them.

Life is complex, life is sometimes messy. People are human. I think we need to be really careful about looking down on anybody in a different walk of life, or in a different stage of their life.

Wally says it all the time, our head coach, that football is life between the lines. If I know that I have guys around me who fully support me, even if I slip up, I’m the quarterback, I make a ton of decisions on the field and not all of them are going to be perfect and I have to accept that. But, if I know that the rest of my teammates are still supporting me and feeling good about me being behind centre for them and when I go to the sidelines and get a pat on the back, or hey, we’ll get ‘em next series, or we’ll get ‘em next drive or even after a loss, hey, let’s get better this week.

In life, if you have that kind of support system, if there are people telling you, listen we love you, we care about you and I want to see you to continue to get better, I think, that makes it that much more likely that a person is willing to be vulnerable or be courageous enough to take a step towards bettering themselves.

Growing up a lot of times that was what we were told, that’s what it looked like to be a man, was, you know, you tough it up, you walk it off, you find a way to deal with it right? I think there’s a ton of strength in someone being able to be vulnerable. Takes a lot of courage.

These are people that we’re living, breathing, walking, talking sharing this earth with and I think, it’s a greater, it’s a broader social issue than us versus them. This is all of us doing this thing together.

We can all be part of the solution.

Written on the screen:

Get involved. Get informed. Get help.

Learn more at StopOverdoseBC.ca
People suffer in silence because they’re afraid People suffer in silence because they’re afraid

People suffer in silence because they’re afraid

Each death by overdose is a tragic end to someone’s life which could have been prevented. Geroy Simon from the BC Lions shares how he has been affected by the overdose crisis, and ways to reduce the risks if you or someone you know uses drugs.

People suffer in silence because they’re afraid

Each death by overdose is a tragic end to someone’s life which could have been prevented. Geroy Simon from the BC Lions shares how he has been affected by the overdose crisis, and ways to reduce the risks if you or someone you know uses drugs.

Produced by the Government of BC
Geroy Simon:

Everyday in BC, 3-4 people die from an overdose. I have had friends, had family members lose their life to the opioid crisis and overdose. And it’s something that affects not only that person, but it affects everybody involved with that person — their family, their friends, co-workers, their teammates.

Using illegal drugs today is toxic. And by taking these drugs, it can have consequences that you can’t recover from.

A couple years ago, a long-time friend of mine died of an overdose. She was using with a group of people and she went into overdose and instead of them, you know, calling 9-1-1 right away, they panicked. It’s you know, she’s gone. And a simple phone call could have saved her life.

Even if there’s drugs around, the Good Samaritan laws are here to protect you and it’s not a crime to help someone.

There’s a kit that everyone should have if they’re using drugs called naloxone, better known as Narcan. It’s a kit that reverses the effects of an overdose. If you choose to use, try not to use by yourself. This is something that you should definitely have with you at all times and it could save your life.

I think people suffer in silence because they’re afraid. They’re embarrassed. They think that, you know, there’s a stigma behind it.

You can call, you can text, send an e-mail. I think it’s just important to take that first step and reaching out to someone you know, no matter who it is, just let them know that you’re struggling and that you want to get help.

No one should be left to suffer in silence. No one should die from shame. We can all be part of the solution.

Written on the screen:

Get involved. Get informed. Get help.

Learn more at StopOverdoseBC.ca
Building Hope Building Hope

Building Hope

Men account for around 3 out of 4 of overdose deaths in Canada which has become a leading cause of death across the country. Men in the trades are at particular risk of experiencing substance use-related harms, including overdose.

Building Hope

Men account for around 3 out of 4 of overdose deaths in Canada which has become a leading cause of death across the country. Men in the trades are at particular risk of experiencing substance use-related harms, including overdose.

Daniel:

Well, it’s crazy, in the late ’90s, early 2000s, I didn’t know anyone that overdosed.

And now, I mean, I hear about people overdosing and dying multiple times a week.

When the overdose crisis got declared a public health emergency, or what we’re now calling a toxic drug poisoning crisis, I became pretty acutely aware that I wouldn’t be alive if I was still using opioids.

Trevor:

When I got onto the job site, I found that it was a very comfortable place for me to be.

School, for me, was uncomfortable.

I didn’t feel like I really necessarily fit in among my peers.

But when I found construction, I found a lot of people like myself.

I had a tough story in my life leading up to that, and the construction industry was a place where a lot of people with tough stories found a great place to make a living.

Rob:

Probably by about age 15 to 16, definitely by 15, I realized that I quite enjoyed the feeling of intoxication, of drinking, and it became a big part of my life.

You know, if I could work hard, work extremely hard during the day, and then, you know, put down your tools and then head to the bar or head to the cooler in the back of a pickup truck, inevitably unwinding turned into partying pretty hard.

Kale:

My substance use came before the oil rigs.

In Saskatchewan and many of the other Prairie regions, it’s pretty easy to get drawn into it at a young age, as there’s really not much else to do.

And joining the oil rigs, it had just kind of advanced it with the acceptance of more money, less time, you know, disconnection from friends and family.

Daniel:

A lot of guys that I’ve worked with are working paycheck to paycheck, so there’s not really space for missing time off work.

You get stuck in maybe a mindset or a way of thinking that’s like, “Well, if I take this substance, I can, I’ll be able to get through the day.”

There’s also a reward element, I believe, in it, you know.

You accomplish a lot.

Guys are proud of their work.

Wrapping it up with some drugs or some drinks is pretty normal.

Trevor:

There’s a celebration of the suffering.

We’re proud that we work in that rainstorm or in the mud.

We’re proud of moving the concrete and lifting the heavy lumber.

Good people go out and have a little fun.

They end up home alone and the intention was never to cut their life short.

They just wanted to feel different or to take a break or blow off some steam.

Rob:

I tried to carry out the con, if you will.

I wanted people to know that I was in control, that I knew what I was doing, but it was like a double life.

The Jekyll and the Hyde would come out, and it would take me to dark places and into situations that were very dangerous.

Trevor:

I began using in my vehicle in my commute home.

I would head into my room and use until very early in the morning, where I would finish with one drug and I would switch to another so that I could get back out of the house again and fake my way through another day of work.

Kale:

I was driving down the road.

I had been impaired from the night before, and I’d fallen asleep at the wheel.

And I essentially drove the truck and trailer with equipment on it into the ditch.

And it was my driller’s truck, my boss’s truck.

And, you know, it took on a big file and report, and I lost my employment due to it happening.

It was an incident, a recordable incident, and the company was actually penalized for it too.

Rob:

I lost my brother, who I love dearly, to addiction.

He was a carpenter, and he was injured at work and on a permanent pension and had become addicted to medically prescribed opioids.

Had so much pride in the work that he did as a carpenter, but he just could not overcome the pain that he was in, the physical pain from the hard work that he did for his many years of his life until he had broken his back.

Daniel:

What we’re really up against is that people still haven’t admitted to themselves that the risk has changed.

It’s not your dad’s drug supply.

I do believe that we need to be more open to different pathways.

And for the longest time, the only pathway was abstinence.

It was go to treatment, get sober, and then you go on with your life.

There’s much more nuance in there.

We got to support people in the process, opioid agonist therapy, safe supply.

My life’s completely stabilized when I got on Suboxone.

It was a game changer.

Trevor:

All the times in my career that I struggled, I felt like I had to keep it a secret because I didn’t want to lose the respect of the people around me.

I didn’t feel like there was anybody I could talk to about where I was at.

If you see that somebody is struggling and you don’t know why, it doesn’t make sense, if they’re having too many fights with their family members, if they’re constantly having to move homes, if they’re showing up in less than satisfactory condition from work, check in, ask them some direct questions.

You might save their life.

Rob:

I knew that I had a problem, but I couldn’t find a way to ask for help.

And I’m so grateful that I finally did and that there were people there that would listen and wanted to listen and wanted to help, that I could find out that I wasn’t a bad person.

That I just had an illness and an addiction, and I couldn’t control it on my own.

I needed help.

Kale:

Now that I’m able to be sober and free from my addiction, I help people, essentially, in the oil and gas industry now.

I’ve actually noticed a few people in my rig crew personally that are taking a step away from going to the bar after work like they usually do, and just being able to be safe because they don’t want to be the reason that somebody else loses their life because they make a mistake.

Daniel:

If you’re a person who’s hiding, using your drugs for whatever reason behind closed doors, and don’t want to bring it into the open, then it’s imperative you connect with some kind of resource, some person t hat’s safe for you to talk to them about that, and find a way that you can protect yourself.

Overdose prevention sites, safe consumption sites, get your drugs tested.

You can use an app and be witnessed, or at least have someone check in on you.

Trevor:

I feared I would lose my job.

I feared that people would hate me, my family would abandon me, and none of that has happened.

Not a single one of the things that I feared has come true.

The people around me love me.

The people around you love you, and they just want to see you healthy.

Nurturing Circles of Care Nurturing Circles of Care

Nurturing Circles of Care

Consider Marie. Marie is a First Nations woman who lives in a remote community, several hours from the nearest hospital. She has a history of opioid use and is pregnant with her first child.

Nurturing Circles of Care

Consider Marie. Marie is a First Nations woman who lives in a remote community, several hours from the nearest hospital. She has a history of opioid use and is pregnant with her first child.

Subject Matter Health Research Lab
In the first video, “Beyond Stigma,” we showed how stigma surrounding opioid use creates barriers for people seeking treatment for pain. But stigma is experienced differently by everyone.

Consider Marie.

Marie is a First Nations woman who lives in a remote community, several hours from the nearest hospital. She has a history of opioid use (“Addict!”) and is pregnant with her first child. (“They’ll know!”) As an Indigenous person, the stigma Marie faces from her opioid use is compounded by institutional racism and colonialism. And as a pregnant woman, she faces additional stigma.(“They’ll take her away!”)

At last, Marie arrives at the hospital and is ready to give birth. The pain of labour has already begun, and she’s hoping for some relief. But when the doctor sees that Marie is Indigenous (“Might be an addict…”; “IV drug seeking…”; “Check her file!”) he starts firing questions at her. (“What other drugs have you taken? Are you still using? Do you know your baby could go into withdrawal? Should I call child protection services?”)

Marie tries to defend herself, but she’s embarrassed, in pain, and afraid. Eventually, after some debate, Marie receives an epidural and gives birth. (“They won’t let you keep her”)

Later, Marie asks how she can manage any pain. (“Drug seeking…”; “Danger to her child!”; “I won’t be prescribing you any opioids. And I might have to report you to child protection services. If you use again, you could lose custody.”)

“Lose custody…lose custody!”

Marie leaves the hospital, but the shame and fear stay with her. (“Irresponsible!”; “Bad mother!” ; “They’ll report you!”) Remembering how judged she felt, she avoids going to the doctor. And when she needs help managing her opioid use, the threat of losing her child prevents her from getting it.

But it doesn’t have to be this way. Health care providers must learn how colonialism and forced child separation have traumatized Indigenous communities, and eroded trust in healthcare. They must also learn how stigma keeps patients from getting the help they need. Our healthcare system must incorporate Indigenous culture provide better support for families and remove the threat of separation. Above all, patients must be treated with respect, dignity, and compassion.

To learn more about what you can do to combat stigma, visit subjectmatter.ca/circlesofcare.
Treating Pain in Opioid Use Disorder Treating Pain in Opioid Use Disorder

Treating Pain in Opioid Use Disorder

Let’s do a thought experiment. Imagine you’re living with opioid use disorder, also known as opioid addiction. This condition can affect anyone and can have devastating consequences.

Treating Pain in Opioid Use Disorder

Let’s do a thought experiment. Imagine you’re living with opioid use disorder, also known as opioid addiction. This condition can affect anyone and can have devastating consequences.

Subject Matter Health Research Lab
Let’s do a thought experiment. Imagine you’re living with opioid use disorder, also known as opioid addiction. This condition can affect anyone and can have devastating consequences. But you’ve sought help. Methadone is one part of your treatment. With the help of this medication, support and a lot of hard work, you’ve had a more stable life for almost two years. But you’re still stuck with the stigma. This creates major challenges – including when you need treatment for acute pain.

Now, imagine you’ve fractured your arm. You’re treated in the ER but you’re in a lot of pain, so the doctor says they can prescribe something to help. You know it’s relevant so you mention the methadone.

“Drug-seeking,” “addict,” “high risk” …

Prescribing an opioid pain medication is routine for this injury but now you get the sense they don’t trust you.

“Umm, you’ll have to see your methadone provider.”

You get one dose of pain medication and you go home in pain and feeling rejected. You wish you’d never mentioned the methadone.

At the methadone clinic the doctor tells you they only handle methadone, and that you should see your primary care provider instead.

You can’t get an appointment with your primary care provider before next week. But you’re in pain now, so you try a walk-in clinic. This time, you don’t mention the methadone, and you’re prescribed a short course of a low dose opioid.

At the drugstore, the pharmacist reviews your file.

“Double doctoring,” “overdose risk,” “diversion” …

They speak to you sternly about mixing medications.

“Drug problem,” “addict” …

“No point” …

You’re discouraged, but hopeful your primary care provider can help. But before you can see them you’re asked to do a drug test.

“Difficult,” “addict” …

Your primary care provider reluctantly gives you yet another short prescription for a low dose opioid. They tell you it’s actually your methadone provider who needs to handle this, and that maybe they should increase your dose.

Now, exhausted by the run-around, frustrated by the way you’ve been made to feel, and overwhelmed by your ongoing pain, you feel you’re out of options. So how do you cope? You resort to something you thought you’d left in your past. You contact a drug dealer.

You know this might be dangerous for you, but it’s convenient and available – and you trust your dealer. You finally get some pain relief, but now you’re ashamed and fearful of losing all your progress.

“Worthless,” “failure” …

Now, let’s imagine this scenario again – but this time, the providers you meet are aware of stigma and systematic changes have been made to reduce its impact on the care you receive.

When you mention you take methadone, instead of reacting with suspicion and discomfort, your providers ask you some important questions:

“How long have you been taking methadone at this dose?”

Instead of making quick assumptions, they see a more complex picture. They tell you your pain should be treated aggressively and with close follow-up.

“When did you last use other opioids?”

They understand you may require higher doses of opioids to effectively treat your pain. They explain that for some people with substance use disorders the brain perceives pain differently.

“How do you feel about treating your pain with an additional opioid?”

Your providers know that just increasing the dose of your methadone is unlikely to be effective.

“How is this plan working for you?”

They understand that the distress of untreated acute pain increases the risk of returning to old coping strategies.

Now that you’re fully informed, you and your providers work out a treatment plan together.

This plan is not simple, but with the support of your care team, your treatment is successful. The opioid pain medication is tapered off as your pain subsides, and you continue with your regular methadone dose. Imagine how you feel now.

Stigma shames and discredits people with opioid use disorder, and creates health care systems that dismiss and disconnect people from care. To change this, individuals must examine their biases, and systems rooted in stigma must be reformed. Only then can people with opioid use disorder get the compassionate, evidence-based care they deserve.

We can move beyond stigma.
Open Quote

A lot of us struggle really hard. It’s not easy when you don’t have the support. I would like to be heard. Get to know me – or say you don’t want to get to know me – but don’t look down on me, you don’t even know me.

Close Quote
The Impacts of Stigma

Don’t look down on me


Lenora:

Every time I hear the ambulance it scares the hell out of me because I’m thinking it is someone I know.

I’m 50 years old and I’m the mother of two daughters. My daughters are smart and amazing and I’m so proud of them. They make me happy. I’m a grandmother and my grandbabies make me happy. Just being with them and being able to be alive, and clean, makes me happy.

I was born in the States, my parents moved us to Canada. I grew up in an alcoholic environment. I was the black sheep in my family. My mother and I were never really close. There was a lot of abuse, physical and mental, as a kid. I live in Prince George now and I’ve been fighting addiction for many years. It’s been crazy. I live in second stage housing and I really like it. It’s helped me be clean for the last 3 years.

It is important to have a safe house. Housing is really important because if you don’t have a proper home or house, it’s not safe. It’s crazy out there and it’s getting crazier. A healthy home is clean, maybe has some security, like a buzzer door, so someone can’t just boot your door in. A healthy home is clean, safe, and in a nice area.

I’m a people person. I believe that there is good in everybody. I don’t judge anybody. I feel good about helping people out, being there for someone who is down and out, letting them know that they’re not alone and that things are okay. Just making someone feel good and not scared or worthless makes me happy.

The way I help people is with a smile on my face and a “hey, hi, how are you?” I start a conversation if I see someone struggling. I’m always like “good morning” or “how are you doing today?”, helping an elder walk across the street – that’s what it looks like for me, just being happy and sharing my happiness with whoever is in my path that very moment. If I can make someone else smile, that makes me feel good.

For me, addiction is chaos. It’s collateral damage. I’ve destroyed myself being sick with HIV and HCV [hepatitis C]. Addiction had a big impact in my family. My parents and my siblings, we don’t talk because I’m pretty much shunned for where I’m at.

My daughters are very supportive. They love me no matter what.

Unconditionally. They don’t judge me. They’re there for me for anything that I need or just loving me unconditionally, not looking down upon me or being embarrassed of me or anything like that. I just thank the good lord they are not following in my footsteps. They’re really supportive.

If everyone treated me the way my daughters treat me, that community would be awesome. Because there shouldn’t be judging and stereotyping people because of a sickness or because they’re on welfare or because they’re HIV+ or because they’re an alcoholic. It’s stupid. There is no reason for it to be like that. We’re all supposed to be equal. We’re all supposed to love our neighbour and it’s not like that anymore. It’s horrible. Once you’re an addict, you don’t stand a chance, really. I’ve been clean for going on four years but that doesn’t matter, that doesn’t get looked at. I’m already labelled a drug addict. I am no good. How can you look at me like that? You don’t even know me. It’s sickening that society is like that.

I’ve seen the way I get treated as soon as the doctor or hospital run my CareCard number: “Oh, drug addict. Go sit down. We’ll get to you later.” It’s just wrong. I’m not that kind of person. I’ve never judged anyone, ever. Some of us have different walks of life, it doesn’t mean we chose to be that way. You just feel empty. Why try, because it doesn’t matter.

Just treat me how I would treat you. No judgement. Know me first, before you make a decision about me. You don’t know me. Take a few minutes to get to know me. The downfalls in my life shouldn’t matter. A lot of us didn’t ask to be in this situation, it just happened to be that way. A lot of us struggle really hard. It’s not easy when you don’t have the support. I would like to be heard. Get to know me – or say you don’t want to get to know me – but don’t look down on me, you don’t even know me. We’re supposed to “love thy neighbour,” “support thy neighbour.” That’s changed.

For the overdose crisis, it’s not going to stop. People are going to use, they’re not going to stop. That’s the way it is. Maybe if we had an injection site where there is a nurse around, that could help out. Maybe more of us having a Narcan kit. I don’t know. And overdose is impacted by judgement. The judgement that because this person has an addiction problem, that they’re no good, worthless pieces of shit. Excuse my language. But it’s been going on for years, I don’t know how to change it. Every time I hear the ambulance, it scares the hell out of me because I’m thinking it is someone I know. I just lost a friend of mine four months ago. It’s horrible.

Credit:

Produced by Northern Health BC

Open Quote

I just need people to understand that addiction isn’t something I asked for. It’s like a disease. It happens to anybody, any walk of life.

Close Quote
Why Words Matter

Addiction isn’t something I asked for


Trevor:

I was born in Dawson Creek and raised in Prince George; grew up on the Hart Highway. I came from a good home – my dad drove a chip truck, my mom was a housewife. I went to Kelly Road Secondary.

I didn’t do too well in school, got kicked out in grade 8. I was in and out of different schools and left home on my own at age 16. I ended up hanging around downtown. I didn’t ask to be a drug addict, it just happened.

Me and my spouse, we’re homeless at the moment. We’re both struggling with addiction right now. I’ve been clean off and on for a couple years now but every now and then, we still slip. Homelessness is an ongoing thing we go through. When we don’t have a place to live, we’re stuck wandering around the streets downtown and there are no places to go. People shun you away because they see you downtown all the time and they just label you. It’s really hard when you’re looking for a place. And not only being a drug addict, but being native, too. That’s another thing – as soon as they look at me, they figure I’m an alcoholic. I haven’t drank for 8 years.

What do I want people to know about addiction? That it can happen to anybody. It doesn’t matter what colour you are, what race you are, where you come from.

I’ve seen a lot of people who owned their own companies, who said “it’ll never happen to me.” But it does. It happens. It’s crazy. We don’t ask for it.

The impact of addiction on me has been pretty rough. Like at the hospital, the nurses, as soon as they know you are a drug user or even an ex-drug user – I could not be using for 10 years – and they just label me as drug-seeking. A lot of people won’t even go to the hospital because of the discrimination.

I feel judged by everybody – looking for a place or going into a business, they just take one look at me and label me right away “you’re no good,” “you’re a drug addict.” Just walking around downtown and stuff, you can feel the way people are looking at you, like you’re not supposed to be there. It’s hard.

I’m just as human as everybody else, I just have an addiction. These labels are hard, it’s sad. It makes me feel non-human, almost. It’s really hard.

I’d like to be treated like everybody else – a little bit more respect. Don’t shun me away. If you don’t know me, approach me and ask me a question. I’m happy to talk to people. I do peer counselling for another organization, I go to schools, I talk to children about not following in my footsteps. I don’t want them to end up where I am. Hopefully I get through to a couple of them – then it would be worth it.

I just need people to understand that addiction isn’t something I asked for. It’s like a disease. It happens to anybody, any walk of life. Start treating people with respect and don’t just think of them as a drug addict. Everybody needs help.

Another thing I wouldn’t mind getting across is about all of the overdoses going on in Prince George. I think that a really good thing would be to get a safe injection site. You won’t stop people from using drugs, but at least you can have a nurse be there when you’re using and not be by yourself in an alley or somewhere in the bushes. At least if there is a nurse there, they can give a Narcan [Naloxone] shot. That’s one thing I’m trying to get going for Prince George.

Stigma is why it’s so hard for us to get a safe injection site in Prince George. You’ve got people and business owners who are against it, trying to stop safe injection sites. And stigmatizing people, that’s why they go hide and use on their own. And that’s why there are so many overdoses. There wouldn’t be as many overdoses if there was a safe injection site.

When you see people and you think they’re a drug addict, don’t shun them. Walk up to them and talk to them. Ask them, listen to their stories. You’d be surprised who these people are. Like I said, it can happen to anybody. I never asked for this, I never thought this would ever happen to me. It can happen to anyone.

What do you want people to know about you? What makes you happy?

I like walking around, going to parks. I like talking to people. I like being with my common-law spouse.

I miss my cat. We got a cat, we had him for six years but being homeless, we had to leave him until we can find a place. His name is Stink-Stink!

Things that make me happy? Not being discriminated against. I just like being safe. It would be really nice to have a place to go, a place to live. People with addictions need a safe place to be. Being on the street makes it a lot worse.

Things I’m proud of are when I go to school and talk to young kids. One or two of them even wrote me letters. I keep them in a file downstairs at Positive Living North. Every once in a while, I read them. It keeps me going, doing what I do. It’s nice.

I’d also like people to know that I do a lot of peer counselling. I go to schools, talk to kids about not doing what I did. I tell them my story and what brought me here. I don’t want them to make the same mistakes I did. It feels really good to be a peer counsellor. It makes me happy that I can try to make a difference, even if I reach just one or two people out there.

Credit:

Produced by Northern Health BC

We need to stop shaming addiction We need to stop shaming addiction

We need to stop shaming addiction

Shane Baker is a member of the Gitxsan First Nation. He’s a proud Indigenous man living in Victoria and, in light of the current opioid crisis, he has a special story to share.

We need to stop shaming addiction

Shane Baker is a member of the Gitxsan First Nation. He’s a proud Indigenous man living in Victoria and, in light of the current opioid crisis, he has a special story to share.

Narrator:

We have to stop shaming addiction.

We need to have open conversations about it in our homes, in our offices, in our communities.

Written on the screen:

Start the conversation about drug use.

Talk to your family and friends.

Overdose death can be prevented.

Learn more at FNHA.ca/overdose
Open Quote

For me, a caring community would make a big difference. In a caring community, people with addictions and what not, they will feel love and wanted, and that will lift their spirit.

Close Quote
The Impacts of Stigma

A caring community would make a big difference


Marlene:

I thought I was going to raise a perfect family, but it didn’t turn out that way. I still love them to death and try to support them.

I have a family, five children. Three girls, two boys. I lost my husband and son in 2011. My husband Ron died February 5; he had TB. My son Kevin died three weeks after that, on March 3rd.

We were at the hospital with them all the time. We watched over them, prayed, and wanted them to stay with us, but their time had come. It was time for them to go. It was quite hard on us. Out of five children, three are in addiction, and it was so hard on me.

My family’s addictions were so hard on me. I had a heart attack when my husband and son died. I was always on anti-depressants. There were many times I tried to kill myself because I could not cope with this lifestyle. At one point, I was kinda going downhill, too, and I didn’t want to be there. My daughter, Jolene, rescued me. She took me in and I’ve been with Jolene for 10 years now.

What makes me happy is where I am right now. I’m with my daughter Jolene; I have Genny [my daughter] in my life; I got my other son in my life, but he’s still on addiction. I’m just happy to be where I am. I’ve got a life, I’ve got a wonderful family, and that’s important to me. I’m loving and caring. My heart is open to people who would like to talk about addiction or what it’s like to be the mother of all these addicted kids of mine.

I thought I was going to raise a perfect family, but it didn’t turn out that way. I still love them to death and try to support them. I have been pretty upset because my kids were treated like they were contagious or something. People didn’t want to be around them. They were being judged in the community and I didn’t like it. We are all human, we all bleed the same. Those are my kids, that’s my life, and I’d do anything to protect my kids. I know they have addictions, but I didn’t give up on them.

Support is very important with addiction because people who are addicted, they at least feel like somebody cares for them and loves them, you know. I love people. I just love people. Not just my family, but the street people, too. I love them all. They’re stuck there for a reason. People don’t just get up and say “I’ll do drugs.” There’s a reason for that. My heart goes out to all the people who have addiction. I have a lot of street people come up and call me “mom”, or give me a hug. I’m fine with that! They need love, too.

For me, a caring community would make a big difference. In a caring community, people with addictions and what not, they will feel love and wanted, and that will lift their spirit. Everyone wants to be loved and cared for, but I know a lot of people who use drugs, who are very sick, and they go to the hospital where they get turned away because of their addiction. And that’s not fair. No matter who you are or what you’re doing, you need that caring and that medical attention. Just have faith in these people. Be there for them. Show them you love them. Even though you don’t know them, you can still love them. You’ve got a heart, you can feel their heart. Just be there for them and show them somebody is there.

Just don’t give up. There is always hope.

Credit:

Northern Health